Monday, October 14, 2013

Photo Of The Day

Young woman in a manual wheelchair that has been modified to "ride low", and with pink painted highlights
From the rolling through life Tumblr blog.

Disability News

I set my Google News page to find disability-related stories using keywords, "disabled" and "disability", and I pick a few that interest me ...

Brad Tuttle, Time Magazine - October 12, 2013

This article seems like a first draft of a better editorial, on a topic that may or may not be all that important. Tuttle loosely ties together two fairly recent disability "issues" … people pretending their pets are assistance or therapy animals so they can take them anywhere, and the Disney World line-jumping scandal … and one notably more perennial problem … abuse of handicapped parking permits. My overall reaction is to think, "Yup, that's cheating right there", but it just doesn't make me very angry. The consequences and effects on people with disabilities aren't really spelled out or dramatized. Obviously, these things do hurt people with disabilities, but not nearly as much as employment discrimination, lack of accessibility, or … for many … being stuck in a nursing home or other institution just so they can get help to get out of bed, wash, and go to the toilet. I'm also surprised he didn't fold in the hue and cry over people supposedly scamming Social Security Disability. I think that's a similarly overblown problem, but it does fit the apparent theme … how "ethically challenged" people are these days. Finally, it would have been helpful if the article at least tried to understand how people think about these kinds of cheating. What do they tell themselves in their minds that makes it okay?

Laura Italiano, New York Post - October 14, 2013

Like a lot of disability-related news stories, this article does a great job of dramatizing the issue it's focused on, but leaves a fairly obvious followup question unasked. If the Principal can't navigate her whole school because she now uses a wheelchair and they haven't installed a lift, what did they do with any kids they must have had now and then who used wheelchairs or crutches? They even noted that the Principal's original office was, "at the top of the stairs", and that kids loved to drop in visit with her. Well, disabled kids can't have done, can they?

The thing is, the answer to these questions might possibly be worse than most readers would guess. Knowing a little about how educational decisions are made in New York State, my guess is that grade-school-age kids in that district who use wheelchairs or crutches are sent to a regional BOCES … a separate facility for vocational and "special education" classes. I hope not. I hope that at least some of them have classes moved to accessible floors, or that the school tries some other ways to accommodate them, but if they won't help the Principal get to her office, I'm doubtful that they'd be all that creative with "a few" disabled students.

"60 Minutes", CBS - October 13, 2013

A few letters in response to last week's "60 Minutes" story on suspicions of widespread cheating and corruption in Social Security Disability. It's good to see that the story is getting at least some well-deserved flack from viewers.

Sunday, October 13, 2013

Moving

Disability Thinking is moving. I am working on setting up a Squarespace website where this blog will reside, alongside a bunch of other disability-related content. Blogging here will be light for the next few days, while I make the new place presentable.

Once I do move, I'll announce it of course and put up a link to the new site. Also, I'll leave up this Blogger blog indefinitely. All of my old posts will make it over to the new site, but I think I might be losing my subject tags.

Stay tuned for updates.

Friday, October 11, 2013

Photo Of The Day

From the Soupladle Tumblr blog.

Disability On TV Update

old tv set with wheelchair symbol on the screen
This week "The Michael J. Fox Show" got a little worse, while "Ironside" got a little better. The two haven't quite switched places yet. The M.J. Fox Show is still a better sit-com than Ironside is a drama. But they are close to meeting in the middle. Sadly, neither show is doing well at the moment, and two of my favorite TV critics are listing both among the "walking dead" of the new fall season.

Some specifics ...

The Michael J. Fox Show - Episode 4 "Hobbies"

• The words "flop sweat" showed up a lot in early reviews of this show. At first I thought that was overstating things, but now I'm not so sure. The show feels even more rushed, desperate to make us laugh, than it was when it started a few weeks ago.

• For a show that carefully spells out its lesson for the day at the end of each episode, its lessons are awfully mixed up. Is Twitter a fun medium for snarky aspiring writers, or an appalling weapon of digital bullying? Is Mike basically wrong and paranoid about his newsroom rival, or is she the real sociopath?

• The only reference to Mike's Parkinson's Disease was when he said he was more coordinated on the ice. Actually, I'm not sure that was a Parkinson's reference. If it was supposed to be, they should have connected the dots a bit more … maybe note how it's like stutterers who don't stutter when they sing. Sometimes, you really do have to explain the joke.

• Best moment: The hockey dads have ended up playing each other while the kids watch, bored and literally sidelined. When Mike's wife Annie shows up at the rink, one of the fathers calls out, "Wife!" exactly like Wayne and Garth shouting "Car!" while playing street hockey in the "Wayne's World" movie. It was funny, yet they even let that one drop, because the other players didn't react. They should've stopped skating and gaped at her or something.

Ironside - Episode 2 "Sleeping Dogs"

• This episode was not bad. I actually got into it. They set up a couple of intertwining mysteries that keep my interest. I really wanted to find out what they were all really about. Also, the dialog and one-liners were a little better, funnier, more natural. Everyone seemed more relaxed.

• A few disturbing patterns established in the Pilot seem set to continue. For one thing, if they're going to have Ironside sleep with every sexy woman he flirts with, in every episode, it's going to get stupid and offensive, fast. Also, kind of like the "Fox" show, "Ironside" seems to be shooting for sophisticated moral ambiguity, but missing it and hitting confusion instead. It seems like we're supposed to understand the lesson Ironside learns about child abuse when observing what happened to his former partner's nephew, but I really didn't get what the lesson was supposed to be. Which would be fine, except that it didn't seem to be inviting me to ponder the lesson. We were supposed to understand it, and it wasn't understandable the way they depicted it.

• Given my squeamishness at the Pilot's celebration of police brutality, I did like the little nod in this episode to the idea of cops not shooting people as soon as they appear threatening. The cop physically disarms the suspect instead, then holsters his gun, saying, "Yup, this thing is definitely not working."

• As I hoped, we may be starting to learn about each of Ironside's team, and why he chose them. Presumably, each of these first few episodes will focus on one of them. But the face in the spaghetti moment was odd and weak, especially as a capper to the whole episode.

• As of right now, the new "Ironside" is about at a level of quality that would have made it a solid, not spectacular hit in the early '70s … the equivalent today would be one of the CSI or Law & Order spinoffs. For many reasons that's just not good enough anymore. For starters, the schedule already has enough mid-level police procedurals. However, the thought did trigger another. If "Ironside" doesn't work out, why not add the Ironside character to one of the more established procedurals? Or, have him make an occasional guest appearance? They seem to operate in roughly the same universe … just a slight fictional step back from our real world.

• Maybe I'm grasping as straws, but I just wonder whether a detective in a wheelchair is enough of thing today to base a whole show on. That would be progress, I suppose. If so, it might still be enough for an guest star collaboration with Ice-T and Mariska Hargitay.

• Best moment: "If you're going to stare, at least get the hell out of my way, alright?" -- Sgt. Ironside. Now that is a genuine disability line.

==========

Ironside - Wednesdays, 10:00 PM Eastern, NBC.
The Michael J. Fox Show - Thursdays, 9:30 PM Eastern, NBC.

Thursday, October 10, 2013

Photos Of The Day

old fashioned prosthetic leg with ornate boot and back brace made of leather and multiple buckles
From a collection of Frida Kahlo's possessions, posted by Madam Meow / Holly Gaboriault, via Sunshine, Been Keeping Me Up For Days.

What's It All About: Ableism

If the implied imperative of sexism is something like: "Women must be dominated and subservient", then what do we think is the implied imperative of ableism for people with disabilities?
  • You must be made normal, acceptable
  • You must be covered up, disguised, hidden
  • You must be less disturbing, disruptive, upsetting
  • You must be eliminated, phased out
  • You need protection, supervision, monitoring
  • You must make us feel good, otherwise you'll make us feel bad
I think all of these describe part of what people with disabilities experience as "ableism". At the same time, I don't think it's enough to apply the "ableism" label to, "all bad things that happen to a disabled person."

So, what IS ableism all about?

Late Night Music


Josh Caterer of Smoking Popes covers "Ask" by The Smiths on Tim's deck

For more Morrissey mash-ups of a different kind … This Charming Charlie.

Wednesday, October 9, 2013

More About Sheltered Workshops

Sean Dobbin, Rochester Democrat & Chronicle - October 8, 2013

Lohr McKinstry, Plattsburgh Press-Republican - October 7, 2013

These two articles on New York State's plan to phase out funding of sheltered workshops bring up a couple of surprisingly (to me) valid concerns. At the same time, they don't give nearly enough explanation for why the state is implementing the policy.

First of all, if it's true the state is vague about what they'll consider an employment "success" for someone phased out of a sheltered workshop, then that's a problem. Without knowing any of the details being discussed, I would suggest something like an individual assessment, where "success" means integrated, non-sheltered employment of at least equivalent hours and / or take-home pay.

The second, even more potent concern is that maybe right now isn't the best time to make this change. Sheltered workshops should have been phased out when New York State was at or near full employment … during the later 1990s, or 2005 to 2008 … when a variety of jobs were easier to find, even in more impoverished places like Essex County.

Still, to read these articles, you'd think the whole thing was some sort of pointless bureaucratic "innovation" nobody really wants. That's not true. The "supported employment" model for people with significant developmental disabilities is the state of the art, and organizations that still operate sheltered workshops are behind the times. Sheltered workshops are textbook examples of social work models that were once radical and progressive, but which are now seen as antiquated in comparison with newer ideas. Sheltered workshops were always benevolent in intent, but were from a time that assumed the need for a degree of protectiveness and constant supervision that simply doesn't hold up today. Most people with developmental disabilities and their families want more than a pretend job in a closed, protected, minutely regulated environment, and know that it's possible … or would be in a more or less smoothly running economy.

So, part of me feels that the Essex County agency is right to doubt whether the open job market can do better for their workshop employees. But another part of me has seen two substantial periods of extended economic growth come and go, which people with developmental disabilities basically missed because it was always "too soon" to think of trying something better than sheltered workshops.

Tuesday, October 8, 2013

Picture Of The Day

Cartoon rendering of "Breaking Bad" character in the style of "The Simpsons"
From the Simpsonized Tumblr blog. R. J. Mitte as Walter Jr. "Flynn" White, on "Breaking Bad" … "Simpsonized".

Don't Forget Sen. Coburn ...

While we are (rightfully) calling out "60 Minutes" for the terrible journalism in their "Disability, USA" story ... can we remember also to direct some ire at the main man hyping this SS Disability panic,  Sen. Tom Coburn (R-Okla)?

Sen. Coburn's official website: http://www.coburn.senate.gov/public/

Monday, October 7, 2013

What's it all about? *

I think that there is a significant number of Americans who believe that there's an epidemic of people either faking disabilities, or cynically appropriating the "disability" label, in order to bankroll their laziness or inadequacy. It's the common denominator behind Social Security Disability panic, outrage about Disney World line-jumping, scoffing and eye-rolling at people with chronic pain and other invisible disabilities, grousing about how many school kids are "labeled" as ADHD, and the incoherent rage dumped on people who have the temerity to walk, hobbling perhaps, from their cars parked in handicapped spaces. The vestiges of their grade-school morality won't quite let them hate on quadriplegics and blind people, but anyone else who says they are disabled is fair game.

I'm not saying there are no cheaters. Of course there are. But, it's all a matter of scale, and it seems to me that the level of outrage about these things is way out of proportion to their real prevalence and impact.

And in case we are tempted to think of this as simply a cultural or social issue, the same impulse has caused a wholesale restructuring of disability benefits in the United Kingdom, in which every disabled person has to re-prove in minute detail their disability and its precise extent … with a private, for-profit company paid to do the evaluations, by a government committed to rooting out "benefit scroungers."

* Note: Atrios, the lead blogger at Eschaton.com often uses the title "What's it all about?" when he tries to give his broad perspective on what's actually going on with some political or public policy controversy or other.

Photo Of The Day

Black and white photo of Whirlwind RoughRider manual wheelchair
From the &*@^#$! Tumblr blog. The new Ironside's wheelchair, the Wirlwind RoughRider ... a subtle positive in the new "Ironside".