The first time I wrote anything about my disability for public consumption, I wrote about the difficulties I had with heavy, hard-to-open doors in my high school. It was supposed to be funny, and I guess it was, at least to other highschoolers, because classmates would still occasionally mention the article two or three years later. I can’t honestly remember whether the doors got any easier, or if peoples’ behavior changed for the better, but I think maybe a few people got a taste of what life with disabilities was like. I think they learned that what I found to be problematic was something they’d never thought of.
Friday, March 7, 2014
Winter Paralympics - Saturday, March 8
Alpine Skiing (live)
1:00 AM Eastern
NBC Sports Network
Opening Ceremony (taped)
1:00 PM Eastern
NBC
Paralympics Day 1 Coverage
5:30 PM Eastern
NBC Sports Network
Friday Favorites
I’m starting a new thing. Every Friday I will highlight three of my favorite disability-related websites. Occasionally, like today, I will add a bonus site that isn't about disabilities, but that might be useful to disabled people.
I first read columns by Mike Ervin in New Mobility Magazine, back in the early ‘90s, when I was a shiny new employee at a Center for Independent Living. I had always admired columnists, especially funny ones, and it meant a lot to me then to see a columnist with a disability who took disability as his main topic. I lost track of him after a few years, and then I read a blog post by Roger Ebert, in which he raved about this hilarious disability blogger calling himself “Smart Ass Cripple”. I visited the blog right away, and read several posts, one after the other. I laughed a lot, and also thought I noticed a familiar theme or two. What finally really tipped me off was his reference to his Alma Mater, the “Sam Houston Institute for Technology”, (SHIT), which is what he called the institutional care facility he lived in during his youth. After exploring the nooks and crannies of the blog, I finally discovered that yes, Smart Ass Cripple = Mike Ervin. Nice to see you again!
Smart Ass Cripple isn’t the only disability blogger with my kind of dark sense of humor. What makes him better than most is that most of his posts have not one, not two, but at least THREE layers of meaning. His stories are deceptively simple, his jokes sometimes corny. But soon you notice the meaning under the surface. Then, after maybe reading it again, or perhaps a half hour afterwards, you realize that he’s made a third, quite radical and often serious point. We all should be reading Smart Ass Cripple, and remember … think about it while you laugh, and let the deeper meanings sink in.
This is one of the very first Tumblr blogs I subscribed to, mainly on the strength of a series of ultra-short, Twitter-style statements about the perils and pitfalls of life in a wheelchair … “Wheelchair Problems”. These were presented with large, plain font lettering, centered in solid color boxes in a variety of primary colors. It was a very simple, very effective series and a great way to structure a disability blog. After awhile I started seeing fewer of these “Wheelchair Problems” boxes, and more diary-type blogging … still very short and sweet … about the blogger’s everyday life comings and goings. She started posting photos of herself, confirming that she is a fairly young woman who uses a manual wheelchair. I had guessed that, due to the tone and style of her writing. It’s not that her writing was poor or immature … far from it. It's just that she sounded like a smart, observant teenager, perceptive in some ways, but inexperienced in life. Soon, she started a lot about getting ready to leave home for college. Since then, most of her posts have been about this new adventure, told in little snippets of her daily life, with stories about her small victories and frustrations not just wheelchair-related, but of all kinds. She’s also got a great Twitter feed that you need to follow as well (@forrestgimpp).
I read Wheelchair Problems because for her casual, personal writing style, which says a whole hell of a lot while only rarely saying anything “important” in and of itself. I also read her because it reminds me of when I was first going to college, so her writing makes me feel a bit old and a bit young at the same time.
Think Inclusive is my newest favorite disability website. It isn’t an individual blog, but more like a news or magazine type website. It is run by a Tim Villegas, a Special Education teacher who is committed to “Inclusive” education. I have only sampled a small portion of the articles on this website, but it is crystal clear that it has a very progressive, student-centered, and disability-positive point of view. While there are certainly pros and cons to how divisive the disability world is becoming, especially concerning kids with disabilities and their education, the divisions are real and have meaning, and it is great to see a site geared towards other “professionals” that clearly takes sides … and the side I would choose. At the same time, there’s no “anti” flavor to the site. There are ideas and even groups the site’s contributors oppose, but what we read about most is what they believe in, and take the time to back up with real-life evidence and perceptive, compassionate writing.
I am interested in all sorts of disability issues, but I have a particular passion for how children and youth with disabilities fare in school and in their families. I feel like in “Think Inclusive” I have found a place where I can trust the motives, and learn more about a disability topic I care about.
Bonus: How To Adult
This is a fairly new YouTube series, with only 3 episodes so far, but I think it’s going to be a winner. The title is pretty much all you need to understand the premise. It is an informational series for young adults, soon-to-be adults, and anyone who missed out on any the stuff adults are supposed learn about. It is for people of any age, but from the tone and style, I’d say the main audience is supposed to be “young people”. In fact, if the presenters aren’t careful, they could overdo the slang, quick cutting, and pop culture references. I’m pretty far removed from youth culture myself, but several times I wondered if the presenters might even be a few years out of date in their style. Still, it’s a great idea, and I look forward to seeing more videos.
How To Adult isn’t about disability, but I think disabled people need this kind of thing more often than most. Many of us, particularly those of us who grew up with disabilities from childhood, overlooked these practical little skills while we struggled with “more important things”. We might have done wonders to graduate from high school or college, assemble a support network, and piece together resources to achieve independence, but then find that we don’t know how to wash our clothes properly, or how to introduce ourselves to a neighbor. How To Adult may offer us another painless way to learn the stuff we should already know.
More favorites next Friday!
Thursday, March 6, 2014
Winter Paralympics - Friday, March 7
Opening Ceremony (live)
11:00 AM Eastern
NBC Sports Network
"Not The Fun Kind"
I’m going to break my own rule and add something to this photo. It starts with a comment on the photo from the blogger / selfie-taker herself:
"I never ever ever ever ever ever want to walk again. That was hell. And not the fun kind.”
I am aware that for some people, the notion of disabled people NOT wishing to be less disabled … of wheelchair users NOT working their asses off to walk again someday … is quite controversial. I dare say for quite a few people it sounds utterly irrational, either “crazy” or some sort of contrarian stance. Well, for some of us it is somewhat philosophical. But for others, it is completely practical; doing things the “normal” way hurts, and is just less practical, than embracing tools and adaptations. I walk, it works for me and my everyday needs, and I am glad for all the surgery and physical therapy in my early years that made that possible. But, I used a mobility scooter when I was in college, and when I have to travel through an airport, gimme that wheelchair man.
Finding Our History
Have you ever run across a website that perfectly matches with one of your passions, and wondered, “How is it that I’m only finding this now?”
That’s exactly how I felt when I found my way to the “It’s Our Story” YouTube Channel … a collection of interviews with the people who have witnessed and participated in the key events of the disability rights movement. I’ll be back to visit often, I think, because there are far too many interesting-looking videos to watch in one sitting. I won’t post all of them here, because if you are interested you should bookmark the site and browse it yourself.
I will, however, post this video interview with Jennifer Keelan, who participated in what has become known as the “Capitol Crawl”, a key demonstration aimed at passing the Americans with Disabilities Act.
This video, and the incident it depicts, fascinates me. It is an amazing example of how difficult it is to predict how photos and footage of disabled people are going to be viewed. Will people feel pity, or will they be empowered? Are the two mutually exclusive? Will a deliberate demonstration … some might say a stunt … focus attention on a cause, or distract from it. As it happens, the whole thing worked on just about every level, but I bet with a few slight differences it could have easily failed.
I think this was one of those rare incidents when peoples’ stereotypes and sympathies about disabled people were harnessed to accomplish something constructive … to produce change, not tears. And if there were tears, they were tears of strength and pride, not pity. Very few organizations seem able to pull this off … and ADAPT are masters at it. And, let’s not forget that Ms. Keelan was right.
Here is a clip of the "Capitol Crawl" by the PBS show "Independent Lens". The "little girl" climbing the steps is Jennifer Keelan.
Here is a clip of the "Capitol Crawl" by the PBS show "Independent Lens". The "little girl" climbing the steps is Jennifer Keelan.
Blogging Announcement
I am proud to announce the publication of my first post as a contributing blogger at the special needs website Shared Abilities. The post is titled “We Are The Experts”, and you can read it now by clicking the title link.
The plan for my Shared Abilities blog is to focus on disability issues advocacy. My goal will be to encourage Shared Abilities readers to explore ways that policies, practices, and laws can be changed to make real life improvements for people with disabilities and their families. The first post touches on recent developments with the Minimum Wage. My second post will look at an intriguing and possibly game-changing bill in Congress, the ABLE Act.
Blogging at Shared Abilities won’t change my daily blogging at Disability Thinking. This is my baby, so to speak, and will remain the core of my blogging activities for the foreseeable future. It’s good to branch out, though. I do believe I have some unique things to say, and the whole point is for more people to read them. I am grateful to Shared Abilities for offering me this opportunity.
By the way, I am actually one of six new bloggers announced today at Shared Abilities. I hope you will read the other bloggers as well. They each offer their own unique perspectives on disability.
Here are the links one more time:
Wednesday, March 5, 2014
Vigil Followup
Here are two items to follow up on Saturday’s Day Of Mourning vigils for people with disabilities murdered by parents or caregivers:
Remembering People with Disabilities Murdered by Caregivers - The List
Heather Yaden, Applied Sentience - March 4, 2014
The first is a complete list of the individuals remembered at the vigils. As the web page notes, it can be disturbing reading, so be forewarned.
The second item is a wonderfully written article that explains some of the key concepts behind the vigils. They aren’t just about the murders, they are about how the murders are talked about and understood by the public.
The only thing I would suggest changing, maybe for next year’s vigils, is to add the legal outcome of each specific case. One of the main points of this is that people not only speak sympathetically about the killers, this tacit approval of murder is often reflected in light sentences and even acquittals. I would like to know exactly how common this is. I’m not a fan of passing laws that tie the hands of judges and prosecutors, but it would be worth considering some kind of legal remedy to this problem. Maybe limiting the admissibility of evidence about victims’ disabilities might help, or requiring that background evidence or testimony be given regarding alternative life and care possibilities for people with particular disabilities.
Learning about this observance has been a revelation to me. I had heard about the issue before, but never saw it addressed in such an organized, compelling way. My admiration for the Autistic Self Advocacy Network just keeps growing.
Tuesday, March 4, 2014
Video Of The Day
My Gimpy Life
Episode 8 - “The Morning After"
I'm still 'shipping Teal's roommate and Teal 2.
The Popularity Of "Inspirational"
I realized something while watching the Oscars Sunday night … something that changes how I think about “inspirational”.
I think that “inspiration” and “inspirational” are becoming all-purpose, generic, go-to words for any kind of positivity. The reason we in the disability community hear these words so often is because everyone is using them, everywhere, in every kind of topic, whether they truly fit the situation or not. It is becoming the new “awesome”, and like “awesome”, “inspirational” is over-used. I haven’t made a detailed linguistic study or anything, but I’m getting the impression that variations on “inspirational” these days serve two purposes:
1. To endow people or things with a positive sheen that isn’t bubbly or trivial, but rather deeper, more spiritual, and significant. There is a reverence implied that is different from other kinds of positive regard.
2. To make a sort of backhanded swipe at the emotional and spiritual opposites of “inspirational” … people and things that are ironic, sarcastic, cynical, or depressing. In other words, bummers.
Maybe when people say that disabled people are "inspirational", they just mean we aren't bummers.
I think this increased use of “inspirational” lately is part of a pendulum swing towards positivity, enthusiasm, and reverence, after several decades when popular culture has been dominated by irony, sarcasm, cool detachment, and cynicism. It is the difference between the furrowed brow, and wide-eyed wonder … between complexity and mixed motives, and simple sincerity. If you were an adult right after 9/11, you might remember people speculating then that popular culture would become more emotional and sincere, less detached and ironic. Maybe it's happening, just later than people originally thought.
Or, it could be simpler than all that. Maybe "inspirational" is what spiritual-but-not-religious people say about things that move them, instead of more religious words like “blessed”.
So, why does it still bother us?
I think the root of our distaste for “inspirational” is that 90% of the time it sounds like a default … something nice people say about us when they don’t actually know enough about us to be specific. That’s why I think it usually comes from strangers, and why it hurts even more when, occasionally, even close friends or family use it.
On the other hand, if people call us “inspirational” out of habit more than meaning, then presumably we might persuade them to use words that don’t sound to us like fingernails on a blackboard.
How about a good old-fashioned “Mad Lib”:
"The story about that woman in a wheelchair is so _____________(adjective)_!”
"Can I just say? You are such an _____________(adjective)_ to me.
Of course, another option is to not comment on people ... either positively or negatively ... until you know something about them beyond surface appearances and familiar assumptions.
Monday, March 3, 2014
Oscar Night Followup
I was re-watching Lupita Nyong’o, Academy Award acceptance speech, again appreciating the emotional core of her remarks ...
"It doesn’t escape me for one moment that so much joy in my life is thanks to so much pain in someone else’s.”
Now, Nyong’o was referring to the fact that her role in “12 Years A Slave” (which I haven’t seen yet), was based on a real-life woman who was, in fact, a slave. If I understand her meaning, she was acknowledging the fact that her good fortune is based on the reality of a very difficult life.
While I in no way would compare the life of a slave to living with a disability … a mistake that I’m afraid a lot of people might make if the thought were suggested … it did cause me to wonder what Daniel Day-Lewis said in his acceptance speech when he won the Best Actor Oscar for his portrayal of the real-life man Christy Brown in “My Left Foot". So, I looked it up. Here is the video, and a transcript of his speech:
http://disabilitythinking.blogspot.com/2014/03/another-look-my-left-foot.html
1989 Academy Awards
"You've just provided me with the makings of one hell of a weekend in Dublin."
"I shared Christy's life for a while with a remarkable young actor called Hugh O'Conor. But for everyone involved in the film, all our desire to make the film, all the strength that we needed, all the pleasure that we took in making the film came from Christy Brown. When he was alive he needed very little encouragement to make his voice heard. Now he needs a little more. And I'm truly grateful to you that in honoring me with this award you're encouraging Christy to carry on making his mark. Thank you very much indeed.”
It is a very gracious and succinct speech. He didn’t say anything offensive or condescending. He spoke about giving new voice to a man who when he was alive, struggled in particular to be heard and understood. That suggests D-Day "got it", that he drew good conclusions from his experience “with” Christy Brown. Day-Lewis’ speech doesn’t have quite the empowering ring that Nyong’o’s had, but I think that in a speech about a disabled person, by a non-disabled person, it’s probably best to keep it simple and not try to draw too many dubious connections.
I wonder what Tom Cruise would have said if he had won Best Actor instead, for portraying another real-life disabled person, Ron Kovic, in “Born On The Fourth Of July”?
Also, unrelated bonus for seeing other familiar faces how they looked in early 1990: Jodie Foster, Robin Williams (with a regrettable ‘stache), and Jessica Lange.
Disability Dialogs: Accessibility
Variations on the following exchange happen all the time ...
Disabled person: “Society is ableist! Disabled people are oppressed by ableism!”
Disabled person: “Society is ableist! Disabled people are oppressed by ableism!”
Non-disabled person: “You’re exaggerating. Things are so much better than they used to be!"
Disabled person: “#$%&! All the restaurants in my neighborhood have steps, and the ones with ramps have inaccessible bathrooms!”
Non-disabled person: “Really? That can’t be right, it's against the law!”
Disabled person: “Are you kidding me?”
Non-disabled person: “What?!”
Disabled person: “Never mind …”
Non-disabled person: "You should really speak to the managers about this …”
Disabled person: “You think I haven’t tried?!”
Non-disabled person: “Well, if you talk to them like that, you won’t get anywhere …”
Disabled person: "#$%&!”
Non-disabled person: “Well, if educating the owners doesn’t work, just file an ADA complaint. ”
Disabled person: “You think that will do any good? The only way it would help would be if I could afford the time and money to sue, but I can’t. Pretty much nobody can.”
Non-disabled person: “ … “
Non-disabled person: “You still shouldn’t be so angry. Nobody will listen to a chronically complaining hothead.”
Disabled person: “But, society is ableist! Ableism holds me back all the time!”
… and so on, and so on.
Quite often, the second person in the conversation is another disabled person who has also experienced discrimination and architectural barriers, but has a fundamentally different view and temperament about them. I’m pretty sure this is true because I have been that other disabled person who objected to anger and tried to explain to another disabled person how the ADA works.
Subscribe to:
Posts (Atom)



