Tuesday, August 12, 2014

Two Disability Cultures

Ideas topic icon
I sometimes think that many of the conflicts within the disability community are less about specific disagreements than about peoples’ different responses to sentimentality on the one hand, and irony on the other. It’s almost like there are two disability cultures.

One is sustained by positivity, inspiration, and aspiration, and is either indifferent to or uncomfortable with discussions of policy and advocacy. The other “side” is fueled by injustice, collective action and identity, and a sort of world-weary cynicism about where disabled people really stand in the world. And they are either indifferent to or revolted by heartwarming stories of personal optimism and spirituality.

The only time the two cultures seem to cross is when we occasionally unite to share heartwarming, inspirational stories about prominent disability rights advocates, like Justin Dart and Judy Heumann. Otherwise, our two tribes seem to be carrying on entirely different conversations.

Monday, August 11, 2014

Bad Name, Promising Show

I just ran across this British TV series called The Specials, a reality TV show about five young men and women with intellectual disabilities, who share a house. The show will be coming to the OWN Network here in the U.S. in September. There is also a Web Series on YouTube.

It’s a terrible name … “The Specials” ... which I very much hope is meant to be ironic. What little I have seen of the show suggests that it probably is, because although these peoples’ disabilities are quite apparent, they are not shown to be either helpless or one-dimensional. The other thing that occurs to me is that there is something about British language and culture that seems to help keep sentimentality under control. It’s not cynical or anything, and there are some scenes between these supportive friends that do look heartwarming, but not in the revolting, gooey way a similar show would likely turn out here in the U.S. I can’t prove it, it’s just a feeling.

Something Close To Home

Disability Visibility Project - August 10, 2014

I wish I had known about this protest to make Montréal, Quebec’s Metro system more accessible. 

I live only an hour south of Montréal, and it is my favorite city, but it’s not lost on me that some of its charm comes at the expense of accessibility. It especially bums me out that the Metro is so lacking in access, because in every other way, I love Montréal's Metro!

From this article, I also found a cool Tumblr site by the local group that organized the protest, Access4mtl (Access for Montréal) . They also have a Wordpress site, Accessible Montréal. There are some really great photos there, and this map showing just the portion of the metro that is wheelchair accessible is an amazing piece of persuasive art. I’ll set it next to the actual, official Metro map used n Montréal, to show how effective it is.

 

By the way, if you haven’t visited the Disability Visibility Project lately, or you haven’t been there yet, what are you waiting for? Whether or not you are able to participate by going to a recording site, reading the fantastic guest blog posts and profiles of media partners gives a great overview of what the disability activist community looks like today. There’s something new there pretty much every day, so you need to “Bookmark” or “Favorite” it so you can add the site to your daily website rounds.

Sunday, August 10, 2014

Buy It: "I Claudius"

Claudius, a “halfwit” with a stumble and a stutter, is the least respected, most ignored member of Caesar Augustus’ family. This is both a curse and a blessing. This is Claudius’ own story, which he is writing at the end of his life, as the aging Emperor of Rome. This acclaimed BBC series is based on the books by Robert Gaves, "I, Claudius" and "Claudius The God”, both of which are fictionalized accounts based on the actual life of Emperor Claudius, who had cerebral palsy and epilepsy. It features outstanding performances from everyone, including Derek Jacobi as Claudius and John Hurt as Caligula.

I plan on covering "I, Claudius" next Spring in my new podcast, Disability.TV.

Weekly Wrap-Up

Disability Thinking Weekly Wrap Up in white letters superimposed over sepia-tone photo of handicapped parking spaces
Sunday, August 3, 2014
Monday, August 4, 2014
Tuesday, August 5, 2014
Wednesday, August 6, 2014
Thursday, August 7, 2014
Friday, August 8, 2014
Saturday, August 9, 2014

Saturday, August 9, 2014

Blogging Break

Color photo of blue sky, a few white clouds, and bright sun
The local weather is calling this a “5-star weekend”, so I’m going to take a break from blogging today. I may do a little tidying and dusting around the site, but that’s about all until tomorrow.

Friday, August 8, 2014

Disability.TV Podcast - Ep. 1.5, Mini-Cast


The next episode of Disability.TV is up. It’s a “Mini-Cast” in which I replay the disabled character samples from the Introductory episode, this time with actual audio, and take a little time to explain how you can support Disability.TV, the Disability Thinking blog.

Next episode: Friday, August 15: Ironside (Original Series).



Oscar Pistorius' Disability Defense

Photo of a stack of newspapers with headlines on the top reading "Breaking News!"
Leizl Thom, ABC News - August 8, 2014

I would be more sympathetic if Oscar Pistorius' defense was that he, Oscar, is easily startled by sudden loud noises, or that he, particularly, feels physically vulnerable because of his double amputations. But that doesn’t seem to be what he and his lawyer are saying. They seem to argue that Pistorius feels extra vulnerable because of his disability ... as any amputee would feel. Instead of saying, “This is how being a double amputee affects me”, he’s saying, “This is how double amputees are”.

Aside from that, the argument may not work either way. The judge may simply not believe that Pistorius’ feelings of higher vulnerability were severe enough to justify him shooting that gun, apparently without first shouting out, “Who’s there?”, or “I’ve got a loaded gun!” And in the South African judicial system, there’s no jury, just the judge. I wonder if judges in this position are allowed to take into account the effects of precedents? Can she, for instance, rule against Pistorius partly because she’s concerned about giving license to kill to everyone in South Africa who has a physical or psychological injury … who isn’t 100% fit?

I don't have much interest either way in whether people "use their disability as an excuse" for bad behavior or failure. Sometimes disability is a factor in these things. Sometimes it isn't. Sometimes disability helps explain behavior, without excusing it. It depends on each person and their individual sum of experiences. What bothers me is when disabled people invoke and use broad stereotypes of disability in order to take the onus off themselves ... to paint themselves as typical rather than unique.

By the way, for what it's worth, I think the article is a fine example of impartial journalism. It states the arguments being made, without drawing broader conclusions or moral distinctions, as I have just done.

Thursday, August 7, 2014

Music For A Thursday Afternoon


This is another of those disability songs that isn’t really a disability song, but it feels like one to me.

Light Posting Day ...

RSS feed icon with recording headset
I’m working on the podcast today. Expect a mini-episode to come out sometime tomorrow. It will be posted here, and you can also subscribe in iTunes.

Wednesday, August 6, 2014

The George Takei "Controversy": My Two Cents

Woman in wheelchair viewed from behind, standing up to get a bottle of alcohol off a store shelf. Caption says there has been a miracle in the alcohol isle.
Mommy Misadventures - August 4, 2014

This is NOT funny
Living With Bob (Dysautonomia) - March 12, 2014

That Crazy Crippled Chick - December 23, 2013

George Takei posted this on his Facebook page and on Twitter. He didn’t create it … it’s been floating around since at least last Fall. He thought it was pretty funny I guess, and added a little quip of his own that kind of doubled down on the joke.

Lots of people criticized the joke, because it depends on factual misconceptions about disabled people. Just to pick one … lots of people who use wheelchairs to get around can, actually, stand or walk a bit when they need to. Okay, one more … disabled people can enjoy an adult beverage, too, and there’s nothing surprising or disreputable about it.

Instead of just apologizing or maybe saying something like, “Hey, wow. I didn’t think of it that way. Sorry about that. And thanks for letting me know!”, Mr, Takei, who is at this point almost as famous as an advocate for progressive causes and battling homophobia as he is for having played Sulu on Star Trek, resisted calls to take it down, saying that critics should take their comments “down a notch”. He also claimed that since the joke does have multiple sides and interpretations, it would spark valuable discussion.

Well, maybe. But when he posted it, Takei wasn't spurring discussion, he was making a cute joke.

It's far from the worst example of ableism, so I don’t have much to add.

Ah, who am I kidding …?

I am more bummed out by Takei’s response to the criticism than I am by the joke picture itself. Don’t get me wrong, the joke is entirely dependent on serious and common misconceptions about disability … misconceptions that make life a little more painful for those of us with physical disabilities. Non-disabled people may find it hard to imagine why this simple stereotype would actually be painful. I’ll explain it, from personal experience.

When I was in college I used an electric scooter to get around campus. It was too small a place for driving, but too big for me to walk. So the scooter was the key to my ability to attend college and do all the college things. Yet, more times than I can count, I would worry a bit in the back of my mind whenever I stepped off the scooter, because it felt like people would see that and, if they didn’t know me, judge me as lazy or faking it or something.

Also, I went for years without using “handicapped” parking spaces because I was afraid of what people would think when I got out of my car and walked into a store. I use a permit now, but I still feel weird and embarrassed when I catch someone looking at me for an extra few moments as I leave my car on foot. I feel like I have to explain myself, which would just be weird, so I don’t. Instead I just have a moment of anxiety. Which isn't horrible or anything, but it's something I don’t need. I don’t think anyone needs more shame, embarrassment, or anxiety in their lives.

Add to this the fairly common (though never discussed in polite company) sub-stereotype that certain disabled people are also personally messed up and dysfunctional, with screwed up priorities that lead them to waste money on booze, when they should be trying harder to be healthy.

So, the joke isn’t grossly offensive, but it isn’t okay and it deserves criticism. My take can be summed up as: “Dude, not cool."

Takei’s response is more upsetting because it is something of a pattern … not with Mr. Takei particularly, but with lots of people who are generally progressive and care about oppressed and marginalized people. It seems that people Takei have well-tuned radar for every form of prejudice there is, except ableism. They probably know what ableism is, but they don’t recognize it when it bites them in the proverbial ass … or comes out of their literal mouths. And, when they are called out for it, their first reaction is the kind of defensiveness they would normally criticize in others for different prejudices.

I think it’s because they can’t conceive of the possibility that they, themselves, might harbor unexamined prejudice. Prejudice is for ignorant people and right-wingers, after all. Right? So, against their better judgment and contrary to their usual beliefs about giving offense and apologizing, they defend themselves with the same kind of self-justifying, bogus free speech, creativity, nonconformity crap that others use to defend rape jokes and stale ethnic humor.

I am finally coming to realize that one of the many features of with living with a disability and being awake to ableism is being disappointed by people we greatly admire for their other, more progressive views, but who seem to view ableism as no big deal.

Tuesday, August 5, 2014

Subscribe In iTunes

You can now subscribe to the Disability.TV Podcast using iTunes! Just click the link here and do what iTunes tells you. I will continue to post individual episodes here on the blog, but if you subscribe, you’ll get all of the episodes automatically, as soon as they come out.

I would also really appreciate listeners leaving iTunes reviews of the podcast. Do me a favor though … wait for a few more episodes before rating the podcast. Give me a chance to find the right voice.

Expect a mini-episode on Friday, August 8th, and a full episode on Friday the 15th on the classic NBC show “Ironside”.

Disability And The Military

Press Release - July 30, 2014


I read an article last year about a young Israeli man with Cerebral Palsy who, though his own self-advocacy, was permitted to serve as an officer in the Israeli Defense Forces. In Israel, military service is compulsory for all but a few very specific groups, including people with significant disabilities. This young man may or may not have started a trend towards broader acceptance of disabled people into the Israeli military, but he certainly demonstrated what should be obvious … that in the modern military, there are plenty of duties that don’t require physical fitness, that disabled people are perfectly qualified to do.

That’s one reason why news of this House Bill caught my eye. Another is remembering a few months in my senior year in high school when I got some phone calls from branches of the military asking if I was interested in enlisting and pursuing certain career paths, based on my test scores. I had no desire to serve in the military, but it rankles just a little bit that the joke then was what a “mistake” they made, not realizing I was disabled.

And yet, I’m not sure exactly what the rules are in the U.S. military regarding disability and active service. As I also mentioned this Memorial Day, British fighter pilot Douglas Bader lost both legs before WWII. Initially, he was refused re-enlistment in the Royal Air Force, due to his disability, even though he had worked out adaptive techniques so he could fly again. Later, after start of the war and in the middle of the Blitz, he was allowed to re-enlist and fly as an active combat pilot.

Is there a difference between how the U.S. military regards serving with a disability acquired after passing Basic Training, and pre-existing disability? Can a soldier continue to service in some capacity after the onset of a disability?

If the military allows some service after a disability, how do they decide who can and who must be discharged? How much depends on the nature of the disability and how much on the nature of the work? Do they only allow non-combat work?

Any feedback from people more familiar with military rules and procedures would be greatly appreciated.