Wednesday, October 16, 2013

It Can Be This Bad

One of the people I "follow" on Tumblr just reblogged this story, and I reblogged it myself. Now I'm including it here because it needs to be everywhere. For clarity, I'm going to actually quote the whole thing below, then add my comments. Original post by Feminist Rocker, reblogged by Andrea Shettle's Tumblr.
(One of my best friends on campus has cerebral palsy, and is confined to a wheelchair. Between the CP and a strong accent, she sometimes has trouble making herself clearly understood to strangers. She is having a strong allergic skin reaction to something; her aid has gone for the night, so I go with her to the hospital. The nurse is crouched down in the waiting room beside my friend’s chair.) 
Nurse:   “And how old is she?” 
My Friend:   “20.” 
(Instead of responding to my friend, the nurse looks at me.) 
Nurse:   “Is that correct?” 
Me:   “I would assume. She can speak for herself. I’m only here as a friend.” 
Nurse. “And for how long have you had these symptoms?” 
My Friend:   “I noticed them this morning, but they’ve gotten very bad.” 
(Again, the nurse looks at me instead of my friend; I say nothing. She continues doing this for several moments, asking questions and then looking at me, until my friend finally snaps.) 
My Friend:   “You talk to me, not her! She’s my friend; she doesn’t know anything about my medical stuff.” 
(The nurse stands up and storms away. I follow, more than a little angry on my friend’s behalf.) 
Nurse:   *to me* “You may think it’s nice to let her pretend to be a real person, but some of us are trying to run a hospital.” 
Me:   “Excuse me?! She’s in a wheelchair; she’s not stupid! She IS a real person.” 
Nurse:   “Well if you want to pretend that’s true, that’s on you.” 
(I am struck completely silent in rage and shock. A doctor, who I haven’t seen until he SLAMS paperwork down on the desk, interjects.) 
Doctor:   “Nurse. Supervisor. Now.” 
(The three of them go back into an office where the nurse comes out in tears; she was suspended for her behavior.)
Stories like this need to be circulated. They need to be read by people who claim that ableism isn't such a big deal, that it's "annoying but benevolent", that it's "harmless". People need to read these stories, including people with disabilities who have been lucky enough in life to experience only minor insults and bureaucratic hiccups. People like me, most of my life.

Shit like this happens. People like this do exist. I still believe that people this poisonous about disabled people are few and far between, but they make up for their low numbers by doing massive damage wherever they go.

And to me, the most galling thing is that people like this nurse probably do believe they are being brave and bold to stick up for their twisted concept of reality. That nurse may have been crying when she left, but I bet by bedtime she was telling herself she was another martyr of "political correctness" or somesuch. Sensitivity training can't help someone like this.

Photo Of The Day

Woman with pink top and glasses in wheechair, with young girl sitting in her lap, both smiling
From the bunnika's blog Tumblr.

An Experiment ...

I'm not completely sure what I expect to find out, but I'm going to try an experiment.

I will copy and paste into a text document, the full text of every news story my Google News page gives me on the keywords "disability" and "disabled". I'll do this every day for two weeks. At the end of the two weeks, I'll paste the entire accumulated text into Wordle.net, which produces color and size-scaled word clouds. Basically this should produce a graphical representation of what words come up most frequently in disability-related news stories.

After reading about and discussing as fact what we assume to be language habits and cliches about disability, I want to see what words actually come up most.

Tuesday, October 15, 2013

Photo Of The Day

Man working on a large-scale sculpture of a man in a wheelchair
From the Just Rollin On Tumblr blog.

Autism, Advocacy, and the Choices of "Parenthood"

Poster for "Parenthood" TV show
I've been watching the NBC series "Parenthood" over the last few days. I wasn't even aware of it when it premiered in 2010, and it has sat in my Neflix queue for about a year. What finally prompted me to watch it was hearing that one of the main characters was a kid with Asberger's, though that's all I heard … I've neither heard nor read anything about whether it's a good, accurate, or helpful portrayal of someone on the autism spectrum. I finally caught the season premier a couple of weeks ago, and one of the first scenes I saw was with that character, Max Braverman (played by Max Burkholder). I was impressed enough to go back and finally watch the whole series from the beginning. It's a great show and I'll probably write more about it later this week.

One of the first season episodes featured the huge Braverman family participating in a fundraising walk for Autism Speaks. This to me was all at once not surprising, surprising, and disappointing. It was not surprising because I think that if you asked the average person to name an autism organization they'd name Autism Speaks, maybe especially if the people you are asking are entertainment industry professionals out to "do some good" … people that Autism Speaks has carefully and successfully cultivated.

It was disappointing because while the show, I think, treats autism / Asberger's with sensitivity and sophistication, those qualities aren't Autism Speaks' long suit. I don't claim to be an expert, but both my gut instinct and a fair amount of reading and inquiring lead me to view Autism Speaks as one of those most vexing of advocacy organizations … one which in the most general sense has good intentions, but whose unexamined prejudices and motivations lead them to arguably do more harm than good. Basically, Autism Speaks adamantly views autism as a "disease", it's primary goal is to cure it and / or prevent it

What could be wrong with that?

First let me say that I don't entirely buy the polar opposite argument, which is that autism is simply a matter of neurological difference, of diversity, and that "neurotypical" people view it as a disease because they refuse to understand it, and are angry because it annoys them and disrupts their lives. By this view, Autism Speaks is just one step shy of being a genocidal organization, and at best a group which claims to be "for" autistic people, which is really mainly interested in milking the frustrations and anguish of parents who can't believe the injustice of having a problematic child. As I say, I don't fully buy this, because I suspect that autism can be quite painful for people who have it as well, and not just because of other peoples' prejudices. But, in case you couldn't tell by my writing, I think this "pro autistics" view has some merit. At the very least, I think that Autism Speaks displays a rather shocking lack of self-reflection. It still hasn't corrected one of the most simple criticisms aimed at it ... that it doesn't have a single person on its Board of Directors or senior staff who has any form of autism.

Anyway, what would I have preferred to see "Parenthood" do rather than make a direct, after-show pitch for Autism Speaks? How about paring it with a pitch for the Autistic Self Advocacy Network, an organization with a different type of mission, founded by and for people who actually have autism spectrum conditions? So far, "Parenthood" appears to be at least acknowledging that autism isn't just a tragedy that happens to families, and that people with autism are full human beings, not noisy, out of control little machines that need to be fixed. Yet, they made the rather lazy, obvious choice not only to show the family promoting Autism Speaks … that would be believable given the organizations ubiquity … but encouraging support for it out of the show itself in real life so to speak, and equating support of Autism Speaks as support for people with autism.

I don't have it all figured out, but it would help to at least acknowledge that there's a difference of opinion on the subject.

Monday, October 14, 2013

Photo Of The Day

Young woman in a manual wheelchair that has been modified to "ride low", and with pink painted highlights
From the rolling through life Tumblr blog.

Disability News

I set my Google News page to find disability-related stories using keywords, "disabled" and "disability", and I pick a few that interest me ...

Brad Tuttle, Time Magazine - October 12, 2013

This article seems like a first draft of a better editorial, on a topic that may or may not be all that important. Tuttle loosely ties together two fairly recent disability "issues" … people pretending their pets are assistance or therapy animals so they can take them anywhere, and the Disney World line-jumping scandal … and one notably more perennial problem … abuse of handicapped parking permits. My overall reaction is to think, "Yup, that's cheating right there", but it just doesn't make me very angry. The consequences and effects on people with disabilities aren't really spelled out or dramatized. Obviously, these things do hurt people with disabilities, but not nearly as much as employment discrimination, lack of accessibility, or … for many … being stuck in a nursing home or other institution just so they can get help to get out of bed, wash, and go to the toilet. I'm also surprised he didn't fold in the hue and cry over people supposedly scamming Social Security Disability. I think that's a similarly overblown problem, but it does fit the apparent theme … how "ethically challenged" people are these days. Finally, it would have been helpful if the article at least tried to understand how people think about these kinds of cheating. What do they tell themselves in their minds that makes it okay?

Laura Italiano, New York Post - October 14, 2013

Like a lot of disability-related news stories, this article does a great job of dramatizing the issue it's focused on, but leaves a fairly obvious followup question unasked. If the Principal can't navigate her whole school because she now uses a wheelchair and they haven't installed a lift, what did they do with any kids they must have had now and then who used wheelchairs or crutches? They even noted that the Principal's original office was, "at the top of the stairs", and that kids loved to drop in visit with her. Well, disabled kids can't have done, can they?

The thing is, the answer to these questions might possibly be worse than most readers would guess. Knowing a little about how educational decisions are made in New York State, my guess is that grade-school-age kids in that district who use wheelchairs or crutches are sent to a regional BOCES … a separate facility for vocational and "special education" classes. I hope not. I hope that at least some of them have classes moved to accessible floors, or that the school tries some other ways to accommodate them, but if they won't help the Principal get to her office, I'm doubtful that they'd be all that creative with "a few" disabled students.

"60 Minutes", CBS - October 13, 2013

A few letters in response to last week's "60 Minutes" story on suspicions of widespread cheating and corruption in Social Security Disability. It's good to see that the story is getting at least some well-deserved flack from viewers.

Sunday, October 13, 2013

Moving

Disability Thinking is moving. I am working on setting up a Squarespace website where this blog will reside, alongside a bunch of other disability-related content. Blogging here will be light for the next few days, while I make the new place presentable.

Once I do move, I'll announce it of course and put up a link to the new site. Also, I'll leave up this Blogger blog indefinitely. All of my old posts will make it over to the new site, but I think I might be losing my subject tags.

Stay tuned for updates.

Friday, October 11, 2013

Photo Of The Day

From the Soupladle Tumblr blog.

Disability On TV Update

old tv set with wheelchair symbol on the screen
This week "The Michael J. Fox Show" got a little worse, while "Ironside" got a little better. The two haven't quite switched places yet. The M.J. Fox Show is still a better sit-com than Ironside is a drama. But they are close to meeting in the middle. Sadly, neither show is doing well at the moment, and two of my favorite TV critics are listing both among the "walking dead" of the new fall season.

Some specifics ...

The Michael J. Fox Show - Episode 4 "Hobbies"

• The words "flop sweat" showed up a lot in early reviews of this show. At first I thought that was overstating things, but now I'm not so sure. The show feels even more rushed, desperate to make us laugh, than it was when it started a few weeks ago.

• For a show that carefully spells out its lesson for the day at the end of each episode, its lessons are awfully mixed up. Is Twitter a fun medium for snarky aspiring writers, or an appalling weapon of digital bullying? Is Mike basically wrong and paranoid about his newsroom rival, or is she the real sociopath?

• The only reference to Mike's Parkinson's Disease was when he said he was more coordinated on the ice. Actually, I'm not sure that was a Parkinson's reference. If it was supposed to be, they should have connected the dots a bit more … maybe note how it's like stutterers who don't stutter when they sing. Sometimes, you really do have to explain the joke.

• Best moment: The hockey dads have ended up playing each other while the kids watch, bored and literally sidelined. When Mike's wife Annie shows up at the rink, one of the fathers calls out, "Wife!" exactly like Wayne and Garth shouting "Car!" while playing street hockey in the "Wayne's World" movie. It was funny, yet they even let that one drop, because the other players didn't react. They should've stopped skating and gaped at her or something.

Ironside - Episode 2 "Sleeping Dogs"

• This episode was not bad. I actually got into it. They set up a couple of intertwining mysteries that keep my interest. I really wanted to find out what they were all really about. Also, the dialog and one-liners were a little better, funnier, more natural. Everyone seemed more relaxed.

• A few disturbing patterns established in the Pilot seem set to continue. For one thing, if they're going to have Ironside sleep with every sexy woman he flirts with, in every episode, it's going to get stupid and offensive, fast. Also, kind of like the "Fox" show, "Ironside" seems to be shooting for sophisticated moral ambiguity, but missing it and hitting confusion instead. It seems like we're supposed to understand the lesson Ironside learns about child abuse when observing what happened to his former partner's nephew, but I really didn't get what the lesson was supposed to be. Which would be fine, except that it didn't seem to be inviting me to ponder the lesson. We were supposed to understand it, and it wasn't understandable the way they depicted it.

• Given my squeamishness at the Pilot's celebration of police brutality, I did like the little nod in this episode to the idea of cops not shooting people as soon as they appear threatening. The cop physically disarms the suspect instead, then holsters his gun, saying, "Yup, this thing is definitely not working."

• As I hoped, we may be starting to learn about each of Ironside's team, and why he chose them. Presumably, each of these first few episodes will focus on one of them. But the face in the spaghetti moment was odd and weak, especially as a capper to the whole episode.

• As of right now, the new "Ironside" is about at a level of quality that would have made it a solid, not spectacular hit in the early '70s … the equivalent today would be one of the CSI or Law & Order spinoffs. For many reasons that's just not good enough anymore. For starters, the schedule already has enough mid-level police procedurals. However, the thought did trigger another. If "Ironside" doesn't work out, why not add the Ironside character to one of the more established procedurals? Or, have him make an occasional guest appearance? They seem to operate in roughly the same universe … just a slight fictional step back from our real world.

• Maybe I'm grasping as straws, but I just wonder whether a detective in a wheelchair is enough of thing today to base a whole show on. That would be progress, I suppose. If so, it might still be enough for an guest star collaboration with Ice-T and Mariska Hargitay.

• Best moment: "If you're going to stare, at least get the hell out of my way, alright?" -- Sgt. Ironside. Now that is a genuine disability line.

==========

Ironside - Wednesdays, 10:00 PM Eastern, NBC.
The Michael J. Fox Show - Thursdays, 9:30 PM Eastern, NBC.

Thursday, October 10, 2013

Photos Of The Day

old fashioned prosthetic leg with ornate boot and back brace made of leather and multiple buckles
From a collection of Frida Kahlo's possessions, posted by Madam Meow / Holly Gaboriault, via Sunshine, Been Keeping Me Up For Days.

What's It All About: Ableism

If the implied imperative of sexism is something like: "Women must be dominated and subservient", then what do we think is the implied imperative of ableism for people with disabilities?
  • You must be made normal, acceptable
  • You must be covered up, disguised, hidden
  • You must be less disturbing, disruptive, upsetting
  • You must be eliminated, phased out
  • You need protection, supervision, monitoring
  • You must make us feel good, otherwise you'll make us feel bad
I think all of these describe part of what people with disabilities experience as "ableism". At the same time, I don't think it's enough to apply the "ableism" label to, "all bad things that happen to a disabled person."

So, what IS ableism all about?

Late Night Music


Josh Caterer of Smoking Popes covers "Ask" by The Smiths on Tim's deck

For more Morrissey mash-ups of a different kind … This Charming Charlie.