Thursday, April 2, 2015

Making Accessible Campaign Propaganda (ahem) Materials

BBC News - March 26, 2015

I am not aware of anyone in the United States making a high-profile, publicized attempt to produce political campaign materials specifically for voters with intellectual disabilities. It sounds like a worthwhile thing to do, and a pretty interesting task.

For one thing, there are so many types and shades of intellectual disability ... which I believe is what the BBC means when they say, "learning disability".

And how, exactly, does one "translate" a party platform so that intellectually disabled people can understand it? What does "simplifying" mean? Do you take out all the metaphors and colloquial phrases? Do you use shorter words and fewer compound sentences? How does "large print" help an intellectually disabled person with (most likely) normal eyesight?

Or, is it about more than grammar and font size? Are there social studies texbooks designed to teach adults with intellectual disabilities what "liberal", "conservative", and "libertarian" mean? Do you try to alert intellectually disabled voters to opaque, misleading slogans that all sound good, even when they contradict each other?

I would really like to learn more about this.

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Throwback Thursday

Illustration of the time machine from the film "Time Machine".A year ago in Disability thinking  Day Off.

A year ago today the weather was nice enough to tear me away from blogging. Today it might snow.

Wednesday, April 1, 2015

Disabled TV Character Face-Off: Sixth Round

In the fifth round, Walter Flynn White, Jr. beat Max Braverman.
Chart showing Max Braverman at a little over 30%, and Walter "Flynn" White with a little under 70%
Here is the updated bracket:
Round six pits John Bates, of Downton Abbey, against Bran Stark from Game Of Thrones. Which character do you like best?

Photo of middle aged white man in a suit.
John Bates
Disability: Limp from a leg wound.
Role on the show: Secondary character in ensemble cast.

Photo of a white boy outdoors wearing a wolf-skin cloak
Bran Stark
Disability: Paraplegia.
Role on the show: Secondary character in ensemble cast.
Create your free online surveys with SurveyMonkey , the world's leading questionnaire tool.

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Tuesday, March 31, 2015

Video Of The Day

Jared Sosa, BuzzFeed - March 29, 2015



I have to offer a light rebuke to Mr. Sosa, for saying that Santina has “been in a wheelchair since she was 5 years old.” I’m not sure, but I suspect that at the time of filming this, she’d been in a wheelchair since she got up that morning.

I found this because Tonia of "Tonia Says linked to it and gave her own interesting answers to the questions Santina answered.

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Two Ways To Improve Disability Journalism

Fedora hat with "PRESS" card stuck in the hat band
It would be so nice if journalists would stop using weird synonyms for disabled” … like handicapped, mentally challenged, and wheelchair-bound. We say it all the time, but they keep appearing in news stories. Just say “disabled” and leave it at that.

Now that we have that out of the way, there are two other ways journalists can improve coverage of disabled people and disability issues. These are, I think, a bit more important:

1. Always look into the potential systemic, structural aspects of seemingly individual stories.

Personal stories of adversity, struggle, and triumph are appealing, but a lot of the problems disabled people face have their roots in laws, policies, and practices that affect other disabled people, too. Yet, many stories about disabled people fail to even address ways that individual disability problems might be solved in more permanent, systematic ways. This reinforces the rather lonely and discouraging idea that dealing with a disability is a solo endeavor. It also gives cover to people and institutions that perhaps should be doing more to make life better for all disabled people.

Example: The story of an Austin, TX high school student with Cerebral Palsy who raised over $80,000 to install push-button automatic doors at his high school. Its a legitimately uplifting human interest story, but a reporter might have asked why the school wasn’t paying for the modifications, since accessibility is part of schools’ responsibility under the Americans with Disabilities Act.

2. Never print or air a story about disabled people without talking to and quoting disabled people.

The principle here is Nothing about us without us. It is a phrase with a long lineage in the disability rights community, but it is just as applicable in journalism. Normally, reporters will at least try to get a direct quote from every individual named in a story, to get their perspective on the issue and not just another persons impression of their perspective. When it comes to disability stories, however, the standard seems to slip. Its quite common in stories about disabled people to never hear directly from disabled people. Instead it seems to be considered acceptable to have parents speak for disabled children or youth, and agency staff to speak for their clients. It is true that a few disabled people cant speak for themselves, but that is a very small number if you allow for speaking through non-verbal or adaptive means. Most people with intellectual disabilities, too, have meaningful things to say about their lives and experiences. In fact, a reporter at times may be in a unique position to give a public voice to people who are, intentionally or not, often left out of discussions that have a direct impact on their lives.

Example: TV coverage of the Bilodeau brothers, the Canadian Olympic Freestyle skier and his brother, who has an intellectual disability. Frederick, we are told, is a huge fan of his Olympian brother Alex. On camera he seems like he could have meaningful, specific things to say, but he is never interviewed, and none of the reporters even mention any attempt to speak to him directly. This happened the same way over multiple interviews with the athlete and the rest of the family, over two successive Winter Olympics. There is every indication that Frederick absolutely does idolize his brother and loves watching him win. The point is that he has never voiced those feelings to the world, in his own words, and we don’t know why.

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Monday, March 30, 2015

For Senate

Mark Murray and Carrie Dann, NBC News - March 30, 2015

As a Democrat and a disabled person, I am very excited about Rep. Tammy Duckworth running for Senate. I think its also interesting that her opponent, Sen. Mark Kirk, is also disabled  recovering from what I recall was a very serious stroke. How will the disability factor play out when both candidates are disabled? Do Duckworth and Kirk have different perspectives on their disabilities? Do they talk about them differently from each other? Or, will their individual approaches to disability just cancel each other out, making disability entirely irrelevant? I look forward to finding out.

I am also thinking that it might be fun to start following all of the major 2016 election campaigns that include candidates with disabilities. I don't tend to think that having more disabled people in Congress or more disabled Governors would necessarily make for better policy, but more of us being in office might have broader, more abstract positive effects on the disabled community.

In any case, following the races might be fun.

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Saturday, March 28, 2015

Spring Cleaning ... Time For A Musical Digression

So, in lieu of the usual disability blogging, heres a video Ive been watching daily for over a week now, of Kim Gordon and the surviving members of Nirvana performing at the Rock and Roll Hall of Fame Induction:



Sonic Youth has been one of my favorite bands since Goo came out in 1990. From there I went back and checked out the epic Daydream Nation, and I was hooked. Kim Gordon was always my favorite member of the group, partly for the usual hetrosexual male reasons, but also because she seemed so enigmatic. She recently published an autobiography, and is making the rounds of various culture shows and podcasts. I listened to her interview on Marc Maron’s WTF podcast, and now I want to hear more from her. For now, I’ll just say that I hope I have half of Kim Gordon’s energy and creativity when I am 62, though there’s no way I have ever been a 16th as cool as she is.

And here is my favorite Sonic Youth performance video:

Friday, March 27, 2015

Let's Be Complainers



Nobody actually likes a complainer, even when they're right. That's one reason why relatively few disabled people ever actually complain in a meaningful way.

We should never feel bad about making informal and formal complaints about poor accessibility or disability discrimination. Complaints are not lawsuits. I’m not suggesting they are pleasant, or that a business you file a complaint about will be totally cool with it. They’ll probably be offended and hurt. But later they may be a little embarrassed, and that’s a good thing. We need a little more shame and feelings of inadequacy in business and local governments when it comes to ADA compliance. In most cases, the worst thing that will happen if you file a complaint is that someone will get a stern but informative notice from the U.S. Department of Justice. The won't be fined or go to jail, and it may not solve the problem right away. But the Justice Department gets a better picture of compliance around the country, and ADA violators will know that they are noticed.

By all means, try to work it out person-to-person at first. Point people to the resources easily accessible online on how to make buildings more accessible, and how to accommodate workers with different kinds of disabilities.
If you run into people who have still never heard of the ADA, (theyre out there, believe me!), or who wildly misunderstand what it says, direct them to the easy-to-remember "www.ada.gov.
And if you dont get a reasonable response, go ahead and file a complaint, using the new, (this month!), Justice Department online complaint form.
Dont forget the customer review” option. There are at least two online databases where you can rate the accessibility and responsiveness of any business that can be mapped. Try one or both of these two sites:
I feel very strongly that ableism wont go away on its own, through everyone becoming more aware. We have to make it go away, and we have the legal and informal tools to do it. The only thing really holding us back, I think, is our own hesitation. So lets all quit complaining, and start filing actual complaints.

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Photo Of The Day

Vintage, sepia tone photo of a young man in an old-style wheelchair, wearing a suit and holding a cane and bowler hat
I love vintage disability photos!

Thursday, March 26, 2015

Newbie FAQs: Advice For Children And Youth With Disabilities

FAQs in big three dimensional blue letters, with a computer mouse
What Do Children And Youth With Disabilities Need To Know About Disability?

There are thousands of ways to answer this question. Most of them are based on a few core ideas about disability. These are ideas that don’t always come naturally to young people with disabilities or their parents, which is why I think it’s a good idea to spell them out.

- Physical access and accommodations to your disability aren’t personal favors or privileges. They are rights you have as a citizen. No matter what your disability is, or how “severe” it is, you have the right to go everywhere non-disabled people go, and do everything non-disabled people do when they get there.

- You may need help from other people all of your life, but that doesn’t mean you have to make people like you all the time. It’s good to be kind, polite, and cheerful, but you can also be angry sometimes, sad sometimes, grumpy sometimes. It’s also okay to decide that you don’t like someone. You won’t be abandoned just because you made a caregiver angry. You are not a burden. You are a person, and you don’t have to “earn” your care by being a perfect angel and never complaining.

- It’s good to make careful decisions about the things you want to do, and how you use the energy and resources you have. But don’t give up on exciting opportunities because you think might need help and you don’t want to be a bother.

- You don’t have to be able to do everything by yourself, exactly the way other people do things, to be independent and successful. It’s okay to do things differently, and it’s okay to get help. Independence is about making your own decisions and organizing your own life, not being able to walk or tie your shoes.

- There are literally millions of people with disabilities all over the world who have an idea of what it’s like having your disability. Don’t turn away from others with disabilities because disability makes you sad, or because you think it will keep you from fitting in and being more “normal”. Other disabled people can be a great source of advice, friendship, and support you can’t really get from anyone else.

Incidentally, these are pretty important ideas for adults new to disabilities as well.

Does anyone have other ideas? Share them in the comments!


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Throwback Thursday

illustration of the time machine from the film "Time Machine"
A year ago in Disability thinking ... A Ventilator In A Fraternity House.

I need to do more biographical posts.

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