Tuesday, January 20, 2015

What I Would Like President Obama To Address In His State Of The Union Address

Color photo of Presidential podium
I will resist the temptation to watch the end of the Canadiens vs. Predators game, do my civic duty, and watch the State Of The Union Address. Actually, I’m into this kind of thing, so it’s not really a hardship.

It’s pretty rare for presidents to talk about disability issues in these addresses, but not unheard of. Here is an admittedly idealistic list of things I would like the President to mention tonight … though I won’t be too surprised or disappointed if he doesn’t:

- If he talks about citizens killed by police … a hot-button issue he may well ignore altogether … I hope he mentions the risks to disabled people like Ethan Saylor, too.

- I really do hope he voices strong support for fully funding Social Security Disability, with a strong repudiation of panicky myths about SSDI being “out of control”.

- He should shame the Senate for still failing to ratify the UN Convention on the Rights of Persons with Disabilities.

- If he cites the ABLE Act as a rare example of bipartisan cooperation, it would be great if he would refer to it as a starting point, not a problem completely solved.

- It is always a good year to broach the subject of long term care, and double down on support for programs that enable the elderly and the disabled to live independently in their own homes.

- It would be an interesting moment right now … while he addresses income inequality and middle class stagnation ... to advocate a final end to paying sub-minimum wage to workers with disabilities.

I will be following the #SOTU4PWD hashtag during the speech. If there’s anything interesting in it, I will do a blog post about it tomorrow.

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An Important Clarification On Assisted Suicide

Diane Coleman, Not Dead Yet - January 19, 2015

This statement from the disability rights organization Not Dead Yet was prompted by a specific, “inside baseball” sort of event, but the statement turns out to be a very effective explanation of why many disabled people and disability organizations oppose legalization of assisted suicide and euthanasia. Plus, it underscores crucial differences between disability opposition to these causes and the “right to life” movement.

The disability rights argument against assisted suicide and euthanasia is almost entirely different than the traditional moral / religious arguments against them, and organizations like Not Dead Yet should not be conflated with conservative and religious organizations like the Family Research Council and Right To Life. There is definitely some overlap in regard to policy, but very little in ideology.

The fact that I oppose assisted suicide and euthanasia doesn’t indicate that I’m a right-winger or religious fundamentalist. Far, far from it. By the same token, agreement on this particular policy issue doesn’t mean that religious right groups necessarily understand or really care about the disability rights perspective.

You can see similar clarifications being mapped out right now over Senate Bill 334, which would ban abortion based on disability or gender. I admit, it’s messy. But the distinctions make sense and they are more or less consistent.

Monday, January 19, 2015

Newbie FAQs: MLK Day

FAQs spelled out in 3-D blue letters with a computer mouse in front
What does disability have to do with the Martin Luther King Holiday?

It’s risky to draw out too many similarities between disability and race. It’s really easy to make these kinds of analogies glib and appropriative. It’s also tempting, and not in a good way, to try and make everything about the Civil Rights Movement match up perfectly with the Disability Rights Movement. The whole thing can get pretty ridiculous and insulting very quickly.

The reason we may think of making the connection is pretty valid though. The everyday experience of both race and disability include social stigma and practical discrimination. In fact, there are reasonable arguments to be made that both race and disability are actually social constructs … that they are in fact all about prejudice, and very little about anything else. I think it’s also worth acknowledging that historically, both the Civil Rights and Disability Rights movements focused on laws and policies to bring about change. And both, to different extents, have seen the limits on how much you can change everyday life by changing laws. You have to do it, but it’s not enough by itself.

Finally, I would say that while the experience of disability is very different in many ways from the experience of race, it is nevertheless true that for many of us with disabilities, disability feels more like race, or other social identities, than it feels like illness or disease. That is still a surprise to some folks when they hear it, and it tends to be a key conceptual breakthrough for disabled people, too, when they have that realization.

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Saturday, January 17, 2015

Disabled TV Character Face-Off: Fifth Round

Tyrion Lannister beat Geordi LaForge in the fourth round.


Here is the updated bracket:


The fifth round features Max Braverman vs. Walter “Flynn” White, Jr. Which character do you like best?

Max Braverman
Disability: Asperger Syndrome.
Role on the show: Secondary character in ensemble cast.

Walter “Flynn” White, Jr.
Actor: RJ Mitte
Disability: Cerebral Palsy.
Role on the show: Secondary character in ensemble cast.

Create your free online surveys with SurveyMonkey , the world's leading questionnaire tool.

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Friday, January 16, 2015

For What It’s Worth ...


They don’t address the social or political implications of his recent statements. They don’t try to judge either way whether certain kinds of disabilities are truly disabling or not. That’s good though. PolitiFact isn’t any more qualified to assess the experiences of different disabilities than Sen. Paul is. They are fully capable of that on strict statistics alone, Sen. Paul is wrong, and that’s saying plenty.

Thursday, January 15, 2015

Don't Look Away

American Horror Story: Freak Show poster
In a little over a week, I will post an episode of the Disability.TV Podcast in which I will discuss American Horror Story: Freak Show with Jane Hash, of the Hash It Out With Jane Podcast.

Sneak preview:

If you are disabled and you care about disability issues, social stigma, ableism and the like, you should at the very least watch the first episode, “Monsters Among Us”. I’m not going to say whether the show is good or bad, offensive or heroic, sensational or thoughtful. Just don’t ignore it because it seems on the surface like it must be nasty and exploitative, by definition. There is more there than meets the eye, and more there, too, than the writers probably know.

Wednesday, January 14, 2015

Disability Fight: Followup

picture of a stack of newspapers with NEWS in big bold headline at the top
Igor Bobic, Arthur Delaney, Huffington Post - January 14, 2015


Sen. Rand Paul couldn’t have laid out a more appealingly wrong case that Social Security Disability is broken:
“What I tell people is, if you look like me and you hop out of your truck, you shouldn’t be getting your disability check. Over half of the people on disability are either anxious or their back hurts. Join the club,” he added. “Who doesn’t get up a little anxious for work every day and their back hurts. Everybody over 40 has a little back pain.”
The problem isn’t that he is wrong, that, in fact, many people are severely debilitated by “anxiety”, and that “back pain” can be devastating. The problem is that what he says here is exactly how a lot of otherwise decent people really think about disability, and about Social Security Disability. In fact, there are probably a lot of disabled people who think this way, too.

The other big potential problem is that Rand Paul, specifically, gets way more benefit of more doubt than most Republicans, because he’s a “Libertarian”. He’s a U.S. foreign policy skeptic. He’s a rare, if inconsistent voice agains the National Security State. He’s favorably disposed towards pot legalization and against the War On Drugs. Sen. Paul is an appealing figure to people who crave someone with a “different” approach to the usual issues, but who aren’t that interested in following ideas to their logical policy conclusions.

I don’t know how to combat this kind of rhetoric, but we’d better figure out soon, because I think we’re going to hear a lot more of it in the near future.

About Photos

Color photo of an antique camera
Arabelle Sicardi, BuzzFeed - January 11, 2015

Karolyn Gehrig’s #hospitalglam photo collection

I haven’t posted interesting disability-themed photos in quite awhile. Partly it’s because my initial enthusiasm for them has faded a bit. Related to that, I’ve started to realize that cool photos of disabled people usually don’t say as much as they seem to when you start paying attention to them. Once you get used to the idea that disabled people look hip and badass, it becomes sort of obvious and thus less remarkable. This is a good thing.

I am sharing links to Karyln Gehrig’s #hospitalglam collection because the photos are so beautiful and interesting, both in the context of disability and chronic illness, and in general as creative photography. Do click through and enjoy!

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Tuesday, January 13, 2015

Newbie FAQs: Accessibility

FAQs spelled out in 3-D blue letters with a computer mouse in front
Why are so many buildings still not handicap accessible? Isn’t that against the law?

This is a very good question!

Most US states* have building codes that include standards for accessibility, including:

- Minimum width for exterior and interior doors

- Measurements for building safe, usable ramps

- Proper height and placement of toilets, sinks, stalls, etc. in public restrooms

- Proper height of tables and service counters

- Minimum width of aisles and pathways inside buildings

Most accessibility standards are designed to make spaces accessible to people using wheelchairs. However, there are also provisions for people using other mobility aids, like crutches and walkers, blind people, and deaf people. The idea is that the default design of all public spaces should be usable by the maximum number of people, including those with disabilities. By building in accessibility as a standard practice, there is less need for more expensive retro-fitting and / or inadequate second or third choice ways of providing service to disabled people.

Accessibility standards are part of building codes, alongside structural standards, fire safety, and all the other basic standards for construction we generally take for granted. They are not options. They are as binding as any other component of building codes.

In addition to state codes, there are the ADA Standards for Accessible Design, which are designed to ensure that accessibility standards have some uniformity everywhere in the United States. By and large, if you design accessibility features according to these standards, you will be in good shape.

So, why are so many buildings still inaccessible?

First of all, accessibility standards have the most effect on brand-new buildings, and to a somewhat lesser extent renovations of existing buildings. They have much less power to force specific accessibility improvements in existing buildings not undergoing any other renovations. That said, under the ADA, businesses are required to make any needed accessibility improvements that are “readily achievable” … that is, feasible and inexpensive. This helps, but it leaves a lot of room for interpretation as to what any given business must do in their particular situation.

Second, failing to comply with accessibility standards isn’t “illegal” in the same way that speeding and robbery are. For the most part, accessibility is enforced through complaints, lawsuits, and, in really egregious cases, intervention by government agencies like state human rights commissions or the US Justice Department. You can’t call your local police to ticket an inaccessible bookstore, and even building inspectors vary widely in how much priority they put on enforcing accessibility standards.

Third, it is, in fact, usually harder and more expensive to make older and older-style buildings accessible than it is to build in accessibility form the ground up. “Old downtown” buildings from the 19th and early 20th centuries generally have narrower doorways, steps at entrances, and less roomy interiors than are standard in new buildings today. They also tend to sit on much smaller pieces of property, with less room for ramps and additions. Because these are “pre-existing” buildings, they are generally only improved when renovated, and then only marginally. Unfortunately, this means that older downtown areas are often less hospitable to disabled people than newer buildings out in the suburban “sprawl”. Yet, many lower-income disabled people live downtown, and don’t have cars or good transportation to get to the more accessible supermarkets and strip malls.

Finally, there is another factor that is powerful, but harder to quantify and define … apathy. Accessibility is still so low on peoples’ list of priorities for social and civic change that it rarely gets much attention at all. There are still business owners and managers who claim, often quite honestly, to not understand their obligations under the ADA, almost 25 years after the law was first passed. Whether this lack of profile is because people don’t care, because they are ignorant of what they can do to improve, or because disabled people aren’t organized enough in their advocacy … it’s hard to say. It’s probably a combination of all three.

There are many strategies we can all use to make accessibility a higher priority. Personally, I think the greatest long term potential lies in consumer recording of accessibility features, and lack thereof, using web-based mapping and business rating sites like AXS Map and AbleRoad. Businesses with poor accessibility need to know that they lose customers as long as they fail to act. That includes not just disabled people themselves, but also, hopefully, their families and friends.

One way or another, more of us have to speak up when we see barriers that shouldn't be there.

* Many, if not most countries also have similar accessibility standards applied locally or nationally … also with varying levels of thoroughness.

Monday, January 12, 2015

Disability.TV - Ep. 18 - Top 5

Disability.TV podcast logo
In which I count down the Top 5 Disability on TV Happenings of 2014. Not necessarily the best … just the most consequential.

5. Red Band Society
4. Cancellations
3. Asperger’s on Parenthood
2. Tyrion’s jail cell conversations on Game Of Thrones
1. American Horror Story: Freak Show



Videos sampled in the podcast:


Don't forget to take the Disability.TV Podcast Survey at SurveyMonkey.com. Vote for the TV shows and topics you'd like me to cover in 2015!

Subscribe:


Comment:

Sunday, January 11, 2015

Saturday, January 10, 2015

The Coming Debate Over Disability

Max Ehrenfreund, Washington Post Wonkblog - January 7, 2015

Funding for the Social Security Disability fund may be the next big political issue facing the disabled community. If so, this Wonkblog article is a great place to start, as we prepare to counter a wave of vague but heated fraud accusations, and divide and conquer rhetoric. Those of us with the more on-the-nose, obvious disabilities will be told that we are not the targets, it’s those lazy, cheating slobs with heart conditions (snort)breathing problems (scoff)back pain (guffaw), and anxiety disorders (raspberry) who are gaming the system.

We need to be on guard against these arguments, because they are wrong. And, while some people talking about widespread cheating and abuse of Disability certainly believe it, I’ll go out on a limb and suggest that a significant number of ideologues know it’s largely bullshit.

We will need to remember that there has always been a core minority of people who think that government support benefits like Social Security are bad … not badly managed, not at risk from cheaters, not too expensive … but BAD, even when done properly. They think the government shouldn’t be involved in supporting individuals at all. They think that it’s bad for poor people to be given money for no work. They think it’s bad for the our moral character. They think it leads people to think that society owes them a living. They believe that two or three generations of social welfare programs have resulted in a lazy, weak, entitled citizenry.

It might be an intriguing discussion for cocktail parties, but we are a step closer now to ideas like this being put into policy. Something like this has already been happening for a few years over in the United Kingdom, with pretty ugly results, built largely on anecdotal newspaper reports of a few disability “scroungers”.

We will need to watch out for the next year or two, is all I’m saying.

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