Thursday, February 12, 2015

Don't Be Distracted

Photo of a stack of newspapers with "Breaking News! in bold headline type
David Ferguson, Raw Story - February 10, 2015

The thing to remember about these incidents where people in caregiving positions lose their shit and spew vile ableism, is that its all too easy to focus on the awfulness of the individual.

Id bet real money that behind this principals rant is what she considers a coherent, probably brave and rational philosophy of disability and education. It seems like she believes that most of her students are horrible monsters  probably not truly disabled in her eyes  who are far too coddled and indulged. She seems to think that the kids are deluded, too, and need to be told in the harshest terms that they are regarded by others as inferior, and will continue to be so unless they shape up. She’s there to whip them into shape and tell it like it is. If this is anything like her thinking, she is not alone.

Its also important to note that this kind of ideology and behavior flourishes much more easily in segregated, disability-only special needs schools and classrooms. Fewer people see what happens there every day, and the special needs moniker is like a protective halo, shielding everyday practice from scrutiny and criticism.

The terrible irony, of course, is that there are probably quite a few families who chose to place their kids in this school because they feared they would be ground down and bullied in a “mainstream” environment. Separate and special often sound “safe”, when in fact, they are just as often the exact opposite.

It's about more than a terrible person. It's a terrible system.

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Wednesday, February 11, 2015

The Definition Of Ableism

Photo of a stack of newspapers with the words "Breaking News!" in big bold headlines
Elizabeth Picciuto, The Daily Beast - February 10, 2015

This is a great article on an important development in the legal rights of parents with disabilities.

This is how disability discrimination works. The whole issue is based on the premise that any disabled parent is less able to be a parent than any non-disabled parent. Yes, it appears the social workers cited a few specific instances of parenting flaws, but they are so minor and occasional that it looks like they sought out those incidents in order to check enough boxes to justify their pre-determined decision.

I suspect what happened is that one or two specific HHS workers got it into their heads that the mother is a mess of some sort … not inspiring confidence or some such “vibe" … and they’re sticking to their guns out of a mixture of what they must view as bravery and highly personal conviction.

For what its worth, I can imagine myself doing something like this, too. I can picture myself meeting a young woman and her parents and just not liking them, or maybe being weirded out by them. Maybe they’re super-religious. Maybe they come off as big time nuts-and-berries hippies. Maybe they don’t believe in vaccination. Maybe it’s one of those families that's adopted like 15 disabled kids. There are all kinds of things that might set off my personal alarm bells. But none of them alone would justify taking a child away from her mother and giving her to foster parents. The difference here is that conventional wisdom still supports the idea that disabled people make suspect parents.

Again, thats the definition of disability prejudice  of ableism.

The part that really baffles me is how the role of the grandparents seems to have been forgotten. Did the social workers take a dislike to them, too? Or, did they initially not even realize they were in the picture, and never reevaluated when it became clear the mother wasnt even planning on raising her child alone?

Finally, take a look at some of the comments to the article. Of course shes incapable. The baby will suffer so she can have her rights. Shes probably going to crank out more and more babies. Lovely stuff, all based on broad generalizations and not at all on the specifics of this situation.

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Monday, February 9, 2015

More Time Out

Still feeling pretty crap. Is there any way I can get some of those scaaaaaary additives they supposedly put in vaccines? I feel like I need the most toxic stuff I can find to get on top of this thing.

So once again, expect a light blogging week.

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Sunday, February 8, 2015

Followup

Anne Grunsted, The Mighty - February 6, 2015

I am posting this as a followup to last weeks item on parents of disabled kids meeting  or not being interested in meeting  disabled adults. Ms. Grunstedencounter was by chance, not design. Maybe that makes it even more valuable. I also want to note that personally, I would probably shy away from overly arranged meetings. Organization tends to introduce artificiality. Arranged meet ups don’t bother everyone though, and I do think they are far preferable to the current situation … where parents of disabled kids, and adults with disabilities, seem to occupy parallel, never overlapping worlds.


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Weekly Wrap-Up

Illustration of a calendar with a red pin in it
Tuesday, February 3, 2015
Wednesday, February 4, 2015
Thursday, February 5, 2015
Friday, February 6, 2015

Saturday, February 7, 2015

Inspiration Porn and Sentimentality

Blue 3-D illustration of a Twitter hashtag
I hope Im feeling well enough tonight to participate in the #FilmDis Twitter discussion. This week’s topic is “Inspiration Porn”. #FilmDis is a weekly real-time discussion about disability on film, led by Dominick Evans  @dominickevans.

Inspiration Porn is definitely a thing, including in film  especially during Oscar Season  especially this Oscar season. Self-consciously uplifting stories of disabled people who overcome their horrible problems to become just as good as everyone else are unoriginal, but reliably effective. Moviegoers who want an emotional catharsis that leaves them feeling better coming out than going in almost always get their moneys worth. I dare say there are lots of disabled moviegoers who lap it up as well. We need encouragement ourselves, sometimes. But for a significant number of us, Inspiration Porn is immediately, instinctively revolting. Why? Whats wrong with us?

The usual answer is that theres nothing wrong with us at all. Inspiration Porn is bad, offensive, harmful. I tend to agree. But I think theres more to it than that … or perhaps less.

I think that a lot of what we in the disability community call “Inspiration Porn” is actually just sentimentality. I can’t stand sentimentality, and not just when it’s disability themed. I can give all sorts of sociological and literary explanations for why “Inspiration Porn” is vile, but the bottom line is I don’t like weepy movies and cheap, formulaic tears wrung out of me, especially when they are based on what I know to be false and misleading portrayals of a life I actually live. I object to it. More importantly I don’t like it.

In a way, maybe thats enough.

The #FilmDis discussion starts at 9 PM Eastern.

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Friday, February 6, 2015

Disability Blogging Link-Up

Word cloud around the word Blog
It's Friday  the Blogging Link-Up is open!

Use the thingamajig below to post a favorite blog post or article on something related to disability. You can post something you've written, or someone else's work you really like.

In the "Your name" blank, type the name of the author or website, and the title of the article or post. For instance:

Disability Thinking: Best Disability Post Ever!

In the "Your URL" blank, paste the whole website address of the article you are posting.

Then click the "Enter" button. That's it!

Note: If your post doesn't appear immediately, try "refreshing" the page a few times. Sometimes it takes a little while to show up. Also, feel free to post more than one item. Finally, you might want to add a comment at the bottom of this post, to identify yourself or add an explanation or comment about the items you are posting.

Have fun posting and reading! This Link-Up will close at Midnight Eastern on Sunday.

Thursday, February 5, 2015

Our "Disability Awareness"

Word cloud around the word IDEAS
Disability Awareness usually refers to making non-disabled people aware of" disability and disabled people. Ive been thinking that the label also nicely encapsulates the mindset that comes with actually having disabilities.

Its the awarenesses we have to develop and maintain, in order to do the stuff we need to do and want to do every day.

Its always knowing we have an extra layer of planning required for us to do, well, just about anything. Of course, everyone has to plan for some things, but we have to plan for everything, and our layers of planning tend to be thicker.

Its always having to factor our disabilities into most experiences. Even being sick is more complicated. Sometimes itworse, sometimes not. But it’s always just a bit more of a pain.

And yes, its the low-grade awareness, that occasionally becomes a high-grade fever, that other people who appear to be just going about their business are aware of your disability. Which not to say they they necessarily understand it, or that they have a problem with it. That’s a whole other issue. The point is they’re aware of it, no matter what we do or think about ourselves.

Again, not necessarily a big deal, but thats our disability awareness.

Wednesday, February 4, 2015

Trailer: Daredevil

Im not a comic books guy, but this might be a thing ...



The whole blind, but with extraordinary senses thing is kind of old, and mostly inaccurate. The trailer at least suggests that the series will be about more than overcoming disability. With any luck, itll be good disability TV.

Tuesday, February 3, 2015

Time Out

Bronchitis is kicking my ass this week, so posting will be light.

Saturday, January 31, 2015

ABLE Act Wonkery

Green 3-D dollar sign
Ann Carrns, New York Times - January 30, 2015

This is an unusually complete explanation of the new ABLE Act. Although it is written entirely from a money / personal finance perspective, itone of the few articles I have seen that gives anything close to equal weight to the idea of disabled individuals opening and using their own accounts for earnings.

Most stories about the ABLE Act focused almost exclusively on families setting aside money to “take care of” disabled loved ones. That’s certainly one of the intended uses of the law, but its one that assumes a more passive role for the disabled person. In fact, the ABLE Act should be very helpful to disabled people who have the opportunity to work and earn.

Of course, it is worth repeating and lamenting that all of this is only available to people disabled before age 26 … a somewhat last-minute restriction cuts out thousands of disabled people who could have benefitted.

Still, if this thing works out well, it could be expanded down the road.


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Friday, January 30, 2015

Max & Hank (and Adam & Kristina)

Silhouette of parents and two small children
Liane Kupferberg Carter, The Mighty - January 10, 2015

In the almost two years since I started disability blogging, I have seen many excellent articles and blog posts, like the one above, offering advice to parents of disabled kids. Not surprisingly, there is a lot of overlap on these lists, since a lot of the best advice is really just common sense. Occasionally, Ill see a suggestion I actually disagree with, but thats fairly rare.

There is one bit of advice for special needs parents that I dont think I have ever seen on a list like this:

Get to know an adult with your childs disability.

I included this in a collaborative blog post I did last year with Kerith Stull, of the Brielle & Me blog, but other than that, I don’t think I have ever seen the idea or anything like it in any other advice article targeted to parents of disabled kids. Not that I think Im so brilliant, but this surprises me. As I always try to say when I write about parenting, I am not a parent myself, but it seems to me like meeting an adult or two with a disability similar to your childs would be a pretty obvious item for any parents to-do list. The relative absence of this idea on special needs parenting blogs suggests two possible explanations:

1. It’s just not occurring to parents, or

2. Parents do give this a try and for some reason don’t find it helpful or satisfying.

It’s the second possibility that has me most curious. I would be interested in hearing from parents of disabled kids who have come to know some adults with disabilities. Do you find that connection helpful, or not? If not, is there anything we, as disabled adults, could do differently to be more supportive of you and your child? You can post replies in the comments below.

Now that I think about it, I have seen this idea indirectly suggested on the TV show Parenthood. In one of the earlier seasons, Adam and Kristina Braverman, (whose son Max has Aperger Syndrome), meet a man living successfully with Asperger's. Later in the series, Max gets to know a photographer who discovers, through Max, that he may have Asperger's too. In both cases, Max's parents gain some perspective on Max's disability, and added hope for his future. It's well worth watching.

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