Friday, February 7, 2014

Winter Paralympics

I am an absolute sucker for the Olympics … both Summer and Winter varieties. I say “sucker” because I actually sort of object to the Olympics and the Olympics mythos in every way you can imagine. It’s a terrible waste of money, often for countries and cities that can ill afford it. They almost never “pay off” the way they promise. There are too many subjective, arty sports for my taste. They foster jingoism as much as international peace. Olympic broadcasting is syrupy and awkward. There’s always one complete and utter a-hole athlete that the TV networks insist is will be the star of the games.

Yet, I can’t not watch them. Mind you, I don’t spend much time actually glued to the games. Most of the time I’m doing something else when they’re on. But they are on in my place pretty much all the time during the games.

Of course, I’m especially interested in the Winter Paralympics, held about a month after the Olympics, also in Soch, Russiai this year, March 7-16. Even though the Winter Paralympics are still a month away, I thought I’d look up a few good websites to visit and use as references once they start:




NBC says it will broadcast a total of 50 hours of Paralympics events across it’s various networks. Note that most likely, the bulk of those hours will be on its “lesser” networks like NBC Sports Network, CNBC, and the like. Right now the schedule page only shows the currently-running Olympic Games, but I’m hoping that when we get to March, the same chart will show the Paralympic broadcasts.

Photo Of The Day

Two views of a "Steampunk" wheelchair, designed in a very ornate way to look like it was made in the Victorian era

From the Gimp Tips Tumblr blog, via The Lame Dame.

Horror Story ... Good News Story

CBS New York / Associated Press - February 6, 2014

First a bit of context, then a few thoughts on this story.

The news segment mentions the New York State Justice Center for Protection of People with Special Needs. It is a relatively new program set up because of several years of shocking stories of abuse and neglect in New York State’s Developmental Disability service system, mostly cases of workers in group homes physically and / or mentally abusing people with developmental disabilities, including physical and cognitive impairments. What emerged from these stories was an apparent situation where problems were kept “in house”, and care workers were given the same kinds of appeal and job protection rights as, say, a unionized autoworker. In other words, “dealing with” abuse or neglect accusations too often meant reassigning someone to a different position, or a different group home, or putting them on paid leave until a review maybe did or maybe didn’t get to the truth of what happened.

I explain this because this case is a good sign that the new Justice Center is working. Someone apparently saw a cellphone video taken by one of the workers, and this person … presumably totally unconnected with and unfamiliar with the DD system ... was able to report the incident to the Justice Center, leading to real, consequential action. As terrible as the practices themselves were, this should in one sense be seen as a “good news” story.

As for thoughts on the story …

Not for the first time, I struggle to resolve whether this is mainly a story of individual evil and depravity, or about the kinds of incidents that crop up again and again in institutional care settings like group homes and nursing homes. I think it’s both, but news stories tend to focus almost exclusively on the individual evil, without questioning the system that allows it to happen or even maybe encourages it. The incidents I describe above that led to the Justice Center being set up were rare examples of a mainstream newspaper … The New York Times … actually connecting the dots and pointing out systemic failures.

The father of a developmentally disabled person who condemned the individuals but essentially defended the institution kind of broke my heart. If you make the decision to go for institutional care for a loved one, it’s got to be awfully hard to acknowledge that maybe the system itself is fundamentally flawed. Seeing individuals within the system do horrible things is terrible, but if you can maintain you faith in the system, then you can convince yourself that everything is going to be okay.

I’m not at all suggesting that this kind of abuse happens in every group home. I’m not suggesting that most group home workers are horrible, amoral, or cruel. What I am suggesting is that there are aspects of any hierarchal, bureaucratic institutional care models ... in which caregivers essentially have power over the people they care for, and the people with disabilities are “under” their care ... that help peoples’ worst instincts to flourish. I think it’s inherent in the institutional model itself. Abuse can happen with home care provided in your own house or apartment, but the power structure there is much, much simpler and easy to cut through if necessary.

On a surface level, it makes me ill to see that the group home in question is named, the “Independent Group Home Living” program. What a misuse of “Independent Living”.

Thursday, February 6, 2014

Minimum Wage ... Updates and Further Thoughts

Sam Hananel, ABC / Associated Press - February 4, 2014

Here is a more up to date report on the minimum wage increase / sub-minimum wage issue. There’s not much new to report, except that it looks like more disability groups are getting into gear and pushing the White House to act. I’d say right about now would be a good time for President Obama to announce that the federal contract worker Minimum Wage hike will benefit all qualified workers, and that nobody will be paid less than Minimum Wage again.

And, here's a terrific blog post that's more of an editorial, but also provides a good overview of this issue.

Sarah Levis, Girl With The Cane - February 6, 2014

I would just add a couple of points.

First, at the moment this argument is only about 14(c) exemption workers who are also working for federal contractors. President Obama's Minimum Wage increase would only apply to federal contractors, and not all 14(c) workers are federal contractors. So even if we win this fight, it won't necessarily do away with 14(c) entirely, and many disabled workers would still get less than the current Minimum Wage. The real value of winning this fairly narrow issue is that it could start the dominoes toppling, leading to the end of sub-Minimum Wage for everyone.

Second, exactly what authority the President has in this matter isn't a simple question to answer. I'm not saying he doesn't have the authority, I'm saying it isn't a "slam dunk". And unfortunately, the moral weight of the issue doesn't make any difference to the legal outcome. The reason why Presidential authority is so crucial is that it would be a much taller order to get Congress to act.

Another possibility that I wonder if anyone has explored is the courts. Make an Equal Protection argument that the 1930s-era 14(c) program is unconstitutional. I have no idea if that is at all feasible, but it's worth thinking about.

Finally, as Sarah Levis says in her blog post, the disability community, itself, is somewhat divided on whether sub-Minimum Wage should be an option. If you believe in your gut that lots of severely disabled people have no realistic hope for a "regular" job, then getting less than Minimum Wage might look like a better option than no job at all. Suddenly increasing pay for everyone in a sheltered workshop might blow up their business models, and put them out of business. That wouldn't break my heart, but it would create at least a short-term problem of how to help the people who would essentially lose their jobs.

Though frankly, I've heard this type of concern mostly from family members of disabled people, and rarely from the workers themselves. They know in their bones that that being paid less than Minimum Wage is unfair and humiliating, and it matters to them.

I still think this is a critical equality issue, and that the President's Minimum Wage increase is a great opportunity to kick off fundamental change. But, it's not going to be easy, and the policy aspects of it aren't as clear as the ethics.

Wednesday, February 5, 2014

Practical Difficulties Of Being An Amputee


This week, AmputeeOT talks about some of the difficulties of being an amputee. Christina encourages people with disabilities to avoid comparing themselves to other disabled people who may seem to "have it all figured out". One disabled person's positivity should never be misused to shame another disabled person, or make them feel like they are somehow failing at being a "good" disabled person. Because we all have our moments!

More Of What Ableists Think

Ideas topic icon
I should really have named the first in this series, which I posted last Saturday, “What Ableists Think”. Here’s some more:

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I saw a thing on TV that the number of people on disability is skyrocketing, and Social Security Disability is going broke soon. It's because of all these people who use disability when they can't get unemployment.

I'm sure a few disabled people are unfairly discriminated against, but really, if they're disabled, aren't most of them less qualified for jobs? Why would an employer hire someone who can't do as good a job when there are other applicants who can?

Disabled people would rather sit on their asses and collect disability than work for a living!

Parents of disabled children are selfish and just want the school to drop everything for their own kids. What about all the other kids?

This mainstreaming thing in schools is just a politically correct fad. We all know those kids are better off in special classes with Special Ed teachers.

She's not disabled, she's just fat!

All those old geezers using Medicare scooters are just fat, lazy people who smoke, don't eat right, and don't exercise. Most of them are Tea Partiers, too, so they're hypocrites because they oppose taxes but want the government to pay for their scooters.

"Retarded" is just slang for lame, stupid things and people. It's not meant for actually retarded people!

I know some pretty cool disabled people, but the thing is they don't dwell on their disabilities.

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Once again a reminder, this isn't what I think, it's what I'm pretty sure ableists think.

Tuesday, February 4, 2014

Photo Of The Day

Blonde woman in wheelchair making dance moves, with colored club lights and blurred movement

Internet Memories

Close up photo of a computer keyboard, one key labeled with the word Blog
Once I started trying to remember my various Internet “firsts”, I uncovered all sorts of steps I’d forgotten about.

My first website went up, I think, around 1994 or 1995, almost 20 years ago. I’m spitballing here, but I don’t think that can be far off. The way I designed that first site … just a page actually ... was by viewing a personal website one of my old college friends had created, and going to the “View HTML” option of my Netscape browser. I copied & pasted the whole code, and bit by bit replaced his information with my write-ups, his photos and graphs with mine. I learned how the color codes worked, and changed them to colors of my liking. I used that basic template for a good 5 or 6 years, though the content didn’t change much. Just my brief biography, some photos, and links embedded in the bio to websites that elaborated on things like my hometown, work, favorite sports teams, favorite albums, and the like.

I started my first blog, apulrang.com, in November, 2000. I believe it was a few weeks after hearing an NPR discussion show talking about these things called “weblogs” that were like diaries you could “publish” on the Internet and would show up like nicely-designed websites. All the dating and organizing and design work was done for you. All you had to do was pick the sort of design you liked, and you were good to go. The designs were amazingly crisp and clean, and devoid of all the flashing lights and garish banners that were all over websites in those days. And, it was free.

That NPR show talked about Matt Haughey and Meg Hourihan, two of the people who came up with the whole idea of blogging, and created Blogger. They might even have been on the show … I don’t remember. My understanding is that Matt and Meg thought Blogger would mainly be used by businesses for communication and idea sharing among employees. I looked up their blogs, and followed them both for several years. That’s also about when I started to get the feeling that there was a cooler part of Internet culture that was more about content and visual creativity than about code and machines.

apulrang.com (it's gone now) consisted mostly of posts about politics and popular culture. It continued more or less without interruption until right after the 2008 Election, when I decided to take a 6 month break. The break never really ended, and it wasn’t until February, 2013 that I started another full-time blog, Disability Thinking. I still use Blogger, and I still like it quite a lot. I’m happy with the blog, too. It’s much better to have something connected with my life, but also outside of myself to write about.

It’s hard for me to understand why it took me so long to blog about disability, since I’ve had disabilities all of my life. Maybe the fact that I worked for so long in the disability field … at a Center for Independent Living … made it too much of a “work” topic. Maybe as with my in-person connections with the disability community, it just took a ridiculously long time for it to even occur to me that the Internet might be a good way to find a critical mass of cool, interesting fellow disabled people. One thing I definitely didn’t expect was to find so many of these great disability bloggers using Tumblr. I read non-Tumblr disability blogs, but the ones that make me laugh half the time, and angry half the time, are mostly on Tumblr. Another thing about Tumblr is that most of the disability bloggers I follow there are a good deal younger than I am. From what I can tell from this admittedly small sample, the disability community going forward certainly isn’t lacking in wit, energy, and swagger. I can’t express how relieved I am to discover this.

So that’s my history with blogging and the Internet. I’ve left out any discussion of the computers I’ve used and owned, and of my introduction in college and grad school to email and other pre-Web applications. Maybe some other time.

Monday, February 3, 2014

March 1 Vigils


"Saturday, March 1st, the disability community will gather across the nation to remember disabled victims of filicide--disabled people murdered by their family members or caregivers."

I think this is really important. If it works and people hear about it who don’t know about or think about these things, it will shock them, in a good way.

I’m the sort of person who wants to understand why people do terrible things like school shootings and murder-suicides. Condemning “evil” people isn’t something I can relate to most of the time. But that doesn’t mean I have sympathy for people who do horrible things, even if I can understand bits ad pieces of what brought them there. I think that people who think about or carry out murdering disabled spouses or children are typically victims of a combination of ingrained prejudice and institutional failures to support people who need support.

That said, when news stories telegraph the idea that these crimes are somehow more “understandable” that other murders, and then fail to question why people become so desperate, they leave the impression that it’s the disabilities that are intolerable, not the lack of support.

Plus, I don’t think we can discount the fact that at least some of the people who do these things are, for all intents and purposes, “evil” … angry, above all, that their lives have been “ruined” by “defective” relatives.

P.S.: I am really admiring the Autistic Self Advocacy Network these days. Along with ADAPT and Not Dead Yet, they are becoming a really effective team addressing the ableism in society that really matters most.

Photo Of The Day

Man with muscular upper body, lifting hand weights, while sitting in purple wheelchair, lit up underneath
From the mitos Tumblr blog, via Independent And Visible.

Light Blogging Notice / Keeping It Simple

I’m working on another grant application for my local Independent Living Center, so my posting may be light this week. For today, I just want to share a priceless little post by one of my favorite Tumblr bloggers, wheeliewifee. She’s responding to someone who asked about who should or shouldn’t use accessible bathroom stalls:
"The accessible bathroom question has a very simple answer and I think that’s why I get so impatient with receiving it over and over: If you need it, use it. If you don’t need it, stay out.
I’m not a doctor. I have no idea whether a person [is] capable of shitting in a regular stall. So people need to have a conscience, be a grown up, and figure it out for themselves!”
Sometimes it’s a relief when someone just cuts to the chase. I mean, a lot of these disability issues aren’t that complicated folks, and frankly, some of us who have disabilities are the ones that make them more complicated than they need to be.

Saturday, February 1, 2014

Recommended: More On Ed Roberts

That Crazy Crippled Chick - January 25, 2014

I’m not going to add much of anything to this link. I just now read it, and want to recommend it to my readers. Its a great remembrance of Ed Roberts.