Friday, January 2, 2015

What’s Gonna Happen In 2015?

2015 in red 3-D numbers
In answer to yesterday’s New Year’s Day question … Here are five things I think might happen in 2015. Because I don’t really know how each of them will unfold, they are questions rather than predictions:

1. What will Congress do to shore up Social Security Disability funding? Can we possibly hope to see new funding allocated without another round of panicky stories about how SSDI is full of fraud and “out of control”?

2. Will The ABLE Act get a real, robust test, with lots of diverse families and disabled people opening accounts and using them for a wide variety of purposes? Or, will it be used mainly by wealthier families as a slight improvement on Supplemental Needs Trusts?

3. Will we see a major shift in public opinion against Sheltered Workshops, a backlash in defense of them, or will this issue remain a debate taking place mostly within the disability community?

4. What will happen to home care in the United States when the new overtime rules go into effect? Will it improve things for both workers and the people they serve? Or, will states and agencies just respond by cutting hours of service, harming disabled people and their home care aides?

5. Will the general public start to view the murder of disabled kids at the hands of “stressed” parents in a different light? Or, will these incidents still be discussed mostly as sad stories of parents frightened by the future and unable to get the “support” they say they need?

You can probably tell how I hope these things pan out. But, while I tend to be pessimistic, I really don’t know what will happen. Maybe nothing will happen at all. Maybe things will turn out for the worse on all of these issues. But maybe, against odds, some good will emerge.

What do you think?

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Thursday, January 1, 2015

Happy New Year!

Happy New Year in big, 3-D red letters, with confetti

I thought about doing a 5 Predictions For Disability World in 2015 post, but honestly entire years go by without anything truly significant happening in the disability community as a whole. There are always plenty of stories of individual triumph, tragedy, and injustice, but real, tectonic changes in the conditions under which we live are very rare.

What do we think? Will anything really big happen in 2015?

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Wednesday, December 31, 2014

Disability.TV Podcast: Looking Back, Looking Ahead

Logo of the podcast, photo of an old style tv set with disability symbols on the screen
The most notable development for me in 2014 was the start of the Disability.TV Podcast. Beginning in August, several guest hosts and I dug into disability depictions on several TV shows of the past and present. All of the podcast episodes are available on the main podcast site, and through free subscription using iTunes or Stitcher. If you want to jump right to the TV show discussions, here is the list so far:








I plan to go back to weekly episodes sometime in January, 2015. Which TV shows with disabled characters should we look at the year ahead? What other related topics should we discuss? I would really appreciate you letting me know by taking the Podcast Direction Survey.

Meanwhile, look for the next episode this coming Sunday, including my list of the Top 5 Disability On TV Events of 2014.

Wider Application


Via The Cryptic Cripple Tumblr blog.

Really well done. Similar posters could be made to deliver the same type of message to disabled people of all genders and ages, too, including disabled children and teens, and elderly people with age-related impairments.

Tuesday, December 30, 2014

Deceptively Simple

There are millions of variations of course, but it seems like most people approach disability and disability issues in one of three modes: angry, ironic, or sentimental.

Monday, December 29, 2014

Mind The Gap

m kelter, invisible strings - December 22, 2014

This is a wonderful piece. It’s one of the very best I have seen addressing the radical differences in how some people view autism as compared to others.

One of the striking things about disability in society is that there are unusually wide gaps between different schools of thought and practice on disability. I’m not even counting the people who are openly hostile towards disabled people … like the eugenicists who think we muddy up the gene pool, or the grouches who can’t stand it that disabled people get all these “special privileges”. Set them aside completely, and you still have tons of people who all absolutely mean well for disabled people, in their own minds, yet are miles apart on what that actually means and what should be done. Disability seems to be one of those things that really demonstrates how people can look at exactly the same thing and come to completely different conclusions about it.

It’s not just autism, either, though the gap there seems to be truly massive. There are similar gaps over long term care … (Nursing homes and group homes, or individualized supports at home and in communities?) … education … (Push hard for higher achievement and independence, or make disabled kids as happy and protected as we can?) … and employment … (Build sheltered workshops and “day programs”, or provide one-on-one coaching and support in real workplaces?).

Again, there are also truly greedy bastards, resentful cranks, and evil predators, too, but even among the “good folks”, there’s a shocking lack of coherence and agreement. I’m not even saying that’s all bad. It can be productive to have real, substantive arguments over any kind of policy. It’s also much better to have intense, divisive arguments than to have only one, unquestioned policy that’s terrible. It makes communication and understanding a lot harder, though.

Sunday, December 28, 2014

Disability.TV - Ep. 17 - Mini-Cast

Disability.TV podcast logo
In which I return from a long hiatus to talk about some listener feedback, ask you for input into what shows to cover next, and generally attempt to get back into a weekly podcasting routine.



As promised in the episode, here is the original comment Tweet from Amanda, and the video comments she posted a couple of days later. The video, in particular, explains her concerns in more detail.




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Weekly Wrap-Up

Illustration of a weekly calendar with a red pin
Monday, December 22, 2014

"It seems like everything else I have read in the last couple of weeks has been either a completely uncritical fluff piece on how awesome it is that Congress passed the ABLE Act, or bitter and somewhat over the top denunciations of the law’s last-minute limitations."

Tuesday, December 23, 2014

"Happy Holidays!"

Saturday, December 27, 2014

"It’s the kind of day where it feels just right to spend a little time catching up on a good web series, like My Gimpy Life."



Also visit ...

Saturday, December 27, 2014

My Gimpy Life Rewatch

I’m just checking in. I’m still on a blogging break, mostly.

I think I like the days between Christmas and New Years better than either of the really big occasions. Everything feels more loose and free-form. It’s the kind of day where it feels just right to spend a little time catching up on a good web series, like My Gimpy Life.



High on the list of Things I’d Like To See:

Amy Schumer and Sarah Silverman as guest stars on My Gimpy Life.

Teal Sherer as a guest comedian on Jerry Seinfeld’s Comedians In Cars Getting Coffee.

Technically, she doesn’t need one, but it would be great to see Jerry hunt down a high-end ramp van to use as the “car”.

Tuesday, December 23, 2014

Short Blogging Break

Color illustration of a cheerful Santa Claus, sitting in a wheelchair





Happy Holidays! I’ll be taking a blogging break from now until the weekend after Christmas.

Monday, December 22, 2014

Best Article On The ABLE Act

Justin King, New America Foundation Weekly Wonk / Vox.com - December 19, 2014

Large kudos to Vox.com for posting the best article on the ABLE Act I have ever read. It accurately describes the problem the ABLE Act was designed to address, properly notes that the new law will probably help, but also explains the new law’s shortcomings. It seems like everything else I have read in the last couple of weeks has been either a completely uncritical fluff piece on how awesome it is that Congress passed the ABLE Act, or bitter and somewhat over the top denunciations of the law’s last-minute limitations. This article even describes exactly how the law itself is a better deal for higher income than lower income families and individuals … something a few Tweets and blog posts alluded to in dire tones in the lead-up to passage, but rarely explained.

Beyond this particular issue, I think it’s really important for the disability activist community to encourage high-quality reporting from mainstream news and opinion outlets on disability policy. Most disability stories come off as journalism-lite … lots of sugary flavor and zero calories.

(Hat tip to the Autistic Self-Advocacy Network).

Saturday, December 20, 2014

Stella Young Memorial

Melissa Davey, The Guardian - December 18, 2014

A memorial event for Stella Young was held on Thursday, December 18, in the Town Hall of Melbourne, Australia.

I don’t have anything to add really. Just watch the videos.

Nelly Thomas



Graeme Innes



Stella Barton