Saturday, March 14, 2015

Disability Or Disease?

This morning I was listening to a Sawbones podcast episode on Malaria. Co-host Justin mentioned people who “suffer from Malaria, and two things instantly went through my mind.

First, I thought, Dont say suffer! Then I thought, “No, wait, Malaria is a disease, an illness, not a disability. Suffer is the right word."

The difference between disease and disability one way of understanding the different ways people approach disability. People who subscribe more to the Medical Model … who focus on treatment, rehabilitation, and finding a cure … think of disability much as we think of Cancer, Leukemia, or Malaria. Most disabilities aren't like that, though. They are social identities, imposed from the outside, and they are more or less permanent conditions that are a part of us.

There are gray area conditions that are a little bit disability, and a little bit disease. Multiple Sclerosis, ALS, and some kinds of Muscular Dystrophy are progressive and can be life-threatening. But they’re not infectious, and on a day to day basis act more like a broken hip than Influenza. See also: Alzheimer's Disease and Down Syndrome.

This helps explain why so many disabled people talk about “fighting,” “beating,” and “overcoming" their disabilities. If you view it as an invading force, it makes sense. And in general, people are more familiar with illness than with disability, so the language and mindset are right there for easy access.

"The Daily Dot" Article

Stylized capital "D", logo of The Daily Dot
Andrew Pulrang, The Daily Dot - March 13, 2015

This is the first of what I hope will be more articles on disability published at The Daily Dot. Thanks to Alice Wong (@SFdirewolf) for putting me in touch with them, and huge thanks to S. E. Smith (@sesmithwrites) for patient editing and showing me the ropes at The Daily Dot.