Saturday, April 25, 2015

Hospital Blogging! Part 4

Hospital icon on the left, moving wheelchair icon on the right
Or, “Tiggers are wonderful things!"

Just to double down on something I mentioned a couple of days ago ...

One way to tell you’re recovering from hospital-level illness is when you start caring again about things you stopped caring about for awhile. For instance, putting on pants and a t-shirt instead of just underwear and a hospital gown. Being a very small guy, I had to wear a gown with Tiggers all over it, and I have to admit, I kind of dug it because Tigger is one of my favorite of the Winnie the Pooh-via-Disney characters. I’m tentatively due to go home Monday though, so it’s time to begin gradually re-upgrading my general living standards. It feels good.

I think I’ll save the shave until I actually get home.

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More hospital blogging:

Hospital Blogging!
Hospital Blogging! Part 2
Hospital Blogging! Part 3

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Mainstream Article on Disability Etiquette

Multicolored word cloud around the word Ettiquette
Ana Swanson, Washington Post Wonkblog - April 24, 2015

You can’t swing a deceased feline in the Disability Blogosphere without hitting lists of advice from disabled people, offered to non-disabled people, on how we prefer to be treated. I think it’s a great exercise for ourselves, and I’ve seen some nice feedback from non-disabled readers, so I know some of them are reading and getting something out of it, too.

This Wonkblog compilation of a Reddit thread is unusually good reading of this kind, and best of all, it’s in a mainstream publication … two of them actually if you count the complete and original back and forth on Reddit. I am especially pleased because I agree with everything on the list. Most of the commenters are saying what disability activists and bloggers say all the time, but I love the irreverence and novelty of how some of these folks explain things. For one thing, they are almost completely free of disability jargon.

I do wonder … Reddit being Reddit … if Ana Swanson intentionally left out angry ableist responses. It's understandable if she did, since she set out to compile good advice, not online hate. However, if there were any ugly comments in the thread, it would be educational to see a sample of them. There is a reference to the common phenomenon of the hyper vigilant, self-appointed guardian of “handicapped parking,” but that is presented mostly as a misunderstanding. The kind of thing I see a lot is people drawing distinctions between “good” disabilities and “bad” ones, a widespread skepticism and intolerance for any kind of “emotional disabilities,” insistence that disabled people who speak out in any way are “just craving attention,” and of course the fiscal conservatives and Libertarians who resent any penny spent on assisting us that comes out of their paychecks.

People who have positive feelings about disabled people and disability issues sometimes can’t imagine that aggressively hateful ableism really exists. It’s so foreign to their thinking that there is a tendency outside the disability community to discount our tales of horrifying ableism as overreaction or misunderstanding. While one must occasionally correct for hyperbole language, the incidents disabled people describe when they let their hair down and really share are quite real. And there are some true haters out there who have special, very intense little resentments directly aimed at disabled people.

I would love to see a compilation like this that not only catalogs online ableism, but categorizes it as well into its most popular themes.

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Friday, April 24, 2015

Thinking About Disability On TV

Disability.TV Podcast logo with URL disabilitythinking.blogspot.comI doubt there are many people who think there's too much disability on TV. People come up with all kinds of reasons why it’s so rare, and why disability stories are the way they are. However, there is a near consensus that life would be better for disabled people if everyone saw more disabled people in popular culture.

That sounds sensible, though I am skeptical about any definite cause-effect relationship, for the good or the bad. Plus, it doesn’t answer a critical question. Which kinds of depictions do the most harm, and which the most good? What exactly are we looking for in disability on TV?

I love TV, I am disabled, and I like digging into why popular culture is the way it is, and what that means for people in real life. That’s why I started a podcast, Disability.TV, and why I have been participating in some great discussions about this on social media, including Saturday evening #FilmDis Twitter discussions. I’ve got so many questions and ideas floating around, at this point. I think this would be a good time for a brain dump. I’d like to see what others think about the questions I have been hashing out.

Questions

Would it be enough just to see more disabled characters on TV shows? What is the relationship between quantity and quality?

Injured man in a fully enclosing futuristic wheelchair
Do we want to see only uplifting disabled characters? Is there any value in disabled characters who aren’t admirable, or do they run too much risk of sending the wrong messages about disabled people?

Do most disabled characters on TV present an authentic disabled person’s point of view, a non-disabled person’s point of view, or a TV writer’s need for something to drive the plot?

What about TV portrayals of some of the terrible ways disabled people have been treated, now and in the past? When does accurate, brave depiction of evil become just more exploitation?

Do we automatically count it against a show if characters on it say things about disability we disagree with? What does it mean when a show clearly wants us to believe one thing about disability, but we see something else entirely on the very same show?

Marlee Matilin as Joey Lucas on The West Wing, signingIs it possible to have good disability portrayals in comedy, without it devolving into mockery?

Are disabled character behaviors that fit into disability cliches and stereotypes inherently offensive?

Is it always offensive for non-disabled actors to play disabled characters? In addition to questions of equal opportunity for disabled actors, is it akin to blackface? Does “cripping up” negate any other value in a depiction?

Is there a correlation between broad popularity and good disability portrayals?

What kinds of disabled characters and disability situations on TV give us joy?

Tyrion Test

Before starting the Disability.TV Podcast, I tried to come up with a simple, clear criteria for judging disability on TV or in the movies. I started with the Bechdel Test, which evaluates how a show or movie portrays women, based on whether it:

1) Features at least two women, who

2) Talk to each other,

3) About something other than a man.

After a few tries, I came up with what I called the Tyrion Test, after my favorite disabled character, Tyrion Lannister on Game Of Thrones:

1) At least one character with disabilities is involved in significant plot developments not centered on their disabilities,

2) Disabilities are depicted realistically, neither less nor more severe than they would be in real life, and

3) Disabled characters are givers as well as receivers … supportive of other characters, not just supported by them.

This is an interesting measure, I think, but it leaves too many angles unexamined.

5-Star Rating System for Disability Onscreen

After several months of podcasting, and conversations about this over Twitter, I decided to come up with a more traditional 5-star rating system, similar to what Netflix and some critics use to rate movies and TV shows. Each TV show can earn up to 5 stars, but each star represents a particular measure.

Authenticity … Are the details of disability portrayed accurately?

Characters … Are disabled characters fully developed, low on cliché, and more than just plot devices?

Messages … Does the work have something to say about disability?

Representation … Are disabled characters played by disabled actors?

Watchability … Is the work overall entertaining and high-quality?

Chief Robert Ironside in wheelchair, with 3 team members
I allow half stars.

The best thing about this system is that it allows full credit for parts of the depiction that work, and takes proportional credit off the score for aspects that fail. Each category is of about equal value. So, since disabled characters are very rarely played by disabled actors, even some very good shows will loose half or a full star for lack of Representation. Similarly, if a show dutifully checks all the speciality disability boxes, but is dull and poorly presented, it’s not going to earn full credit for Watchability, which can significantly impact the show’s overall star rating.

On the other hand, I feel a little like the dour Headmaster in Dead Poet's Society who takes over Mr. Keating's class and tries to teach the kids how to appreciate poetry by use of charts and graphs.

How do you respond to disability on TV? What do you hate to see, and what would you most like to see?

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Thursday, April 23, 2015

Hospital Blogging! Part 3

Large "H" hospital icon on the left, active wheelchair icon on the right

I am out of insights today on the hospital scene. Everything is fine, but there’s not much else to report. My only observation is that I have started noticing the quickly re-learned dependency creeping in. Since I think I’m on the way to being better, it’s time to start doing more for myself. That’s not an original thought, and everyone who spends time in the hospital deals with this. But it’s at least a slightly bigger deal for those of us with disabilities.

It's Throwback Thursday. A year ago in Disability Thinking: Blech!

Well, that’s an interesting coincidence.

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Wednesday, April 22, 2015

Hospital Blogging! Part 2

Large "H" hospital icon on the left, active wheelchair icon on the right
What do I “give” on when I’m in the hospital?

I let people do things for me … and ask them to do things for me … that I normally do myself. Initially, I even let people do things for me that I probably could do even though I’m sick.

I give an accurate rundown of my regular medication and treatment routines but for the first couple of days, I don’t obsessively follow up about it. If the doctors want to alter my usual meds to help fight whatever I’ve got, that’s fine with me. After a day or two, I start gradually taking the reins back, asking which changes are permanent, which temporary, etc.

I try to remember that some people just naturally speak in condescending, nursery-school tones, to everyone. Also, it seems like there are schools of thought in nurse training in particular that promote being super-sweet, while others seem to opt for more businesslike, or more jovial tones. None of these variations necessarily mean anything about how nurses view me and my disabilities.

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Tuesday, April 21, 2015

"The Daily Dot" Article

Daily Dot stylized D logo, white letter on black background
Andrew Pulrang, The Daily Dot - April 21, 2015

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Hospital Blogging!

Large "H" hospital icon on the left, active wheelchair icon on the right
I’ve got pneumonia, so I am in the hospital, I hope only for a few days. There’s good Wi-Fi here, and I’ve got my laptop, so I’m thinking of doing a little detour into that awkward corner of the disability experience, getting acute care for “normal people sickness”, within the medical system. So many of us, as disabled adults, try to keep the medical world at bay, because usually we have had some fairly traumatic experiences with it due to our disabilities. I’m talking about experiences here, not outcomes. I have had great good fortune since my birth in the medical treatment of my disabilities. Yet, it’s not a world I want to be part of, even in a benign way.

So far, everything is going fine here. It’s my hometown hospital, and by and large they know me and my peculiar needs. The night shift staff were great as they got used to my ventilator and helped me get to bed with all the IVs and wires and such. I slept well.

The truth is, when I am really sick, there is some real relief in relinquishing some of my independence and loner-ism and just giving myself over to what they have planned for me. I also take advantage of the little luxuries, if I can. As a Facebook friend commented last night, “Never underestimate the healing powers of popsicles and jello.” Note to self: request popsicles.

The flip side is that when I start getting pissy about things that go wrong, and I start noticing again the absurdities of the entirely bureaucratic hospital ecosystem, then I know I’m just about well enough to go home! I hope that will be soon. In the meantime, I might have more to blog about.

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Monday, April 20, 2015

ADA 25th Anniversary

ADA Americans with Disabilities Act 25 1990-2015
Emily Ladau, Words I Wheel By - April 20, 2015

Cara Liebowitz, That Crazy Crippled Chick - April 20, 2015

I’m sick, I guess, and I have a doctor’s appointment today, but I’m at least going to start working on my own thoughts on positive effects of the ADA. Emily and Cara want bloggers to send them articles on this topic, that they will put into a link-up, to mark the 25th Anniversary of the Americans with Disabilities Act.

Meanwhile, if you want, use this post’s Comments to offer your thoughts on the ADA. Of course, you may also want to write own post for the link-up. If you do, email it to: wordsiwheelbyblog@gmail.com

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Sunday, April 19, 2015

I've had kind of a weird week, including not much time spent on Twitter, and missing last night's #FilmDis discussion, due to illness and sleeping.

That's why I've decided to embed the Storify set up by Alice Wong, the guest host for last night's #Film Dis. She runs the Disability Visibility Project, is a member of Nerds Of Color, and has guested with me on my Disability.TV Podcast, talking about disability on Game Of Thrones.

I'm sorry I missed out last night. Looks like it was a great discussion.

Weekly Wrap-Up

Illustration of a calendar with a red pin in it
Monday, April 13, 2015
Wednesday, April 15, 2015
Thursday, April 16, 2015
Friday, April 17, 2015
Saturday, April 18, 2015

Saturday, April 18, 2015

Why (Wheelchair Users) Can't Have Nice Things

Black line drawing image of a bus
Kristen V. Brown, San Francisco Chronicle - April 18, 2015

There are probably people who understand the value of accessibility, but don't realize just how galling this particular story is for wheelchair users. It’s annoying enough when a new business “forgets" to factor in accessibility, then begs forgiveness because they’re new, just starting out, struggling, whatever. But this is an intentionally high-end company that actually bought some wheelchair accessible buses, then intentionally removed the accessibility features. I don’t think they did so because they didn’t want wheelchair users to ride their buses. I suspect it really was all about space. Where else were they supposed to put those juice bars?

I think there’s also some unconscious ableism at work here. Underneath whatever legal calculations the company might have made, gambling on their interpretation of the ADA, I’ll bet there were at least a few thoughts along the lines of: “How many wheelchair users are going to want to take an expensive, luxury bus to work anyway?” Because disabled people don't get cool, high-salary jobs, and we don’t really care about nice things, even if they do reek a bit of embarrassing hipsterism.

Of course, it’s also entirely possible that at least one person at the company thought, maybe for a few seconds: “Wheelchairs take up too much space anyway …” Seriously, don’t you think that thought went through somebody’s mind, even if they never put it into words?

I usually don’t wish failure on startup businesses. However, I hope for the sake of precedent that what the company did is found to be an ADA violation, and that this sets off a chain reaction leading the whole enterprise to go bust. I’m sure the resulting damage to the Bay Area economy will be quite … limited.

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Friday, April 17, 2015

Disability Blogger Link-Up

The word Blog surrounded by word cloud
Use the blanks below to post a blog post or article on something related to disability … something you want to share.

To make the articles easier to browse, in the “Your name” blank, type the title of the article. In the "Your URL" blank, paste the whole website address of the item you are posting.

Then click the "Enter" button. That's it!

Note: If your post doesn't appear immediately, try "refreshing" the page a few times. Sometimes it takes a little while to show up. Also, feel free to post more than one item. Finally, you might want to add a comment at the bottom of this post, to identify yourself or add an explanation or comment about the items you are posting.

Have fun posting and reading! This Link-Up will close at Midnight Eastern on Sunday. Look for the next Link-Up Friday, May 1, 2015.

Thursday, April 16, 2015

Throwback Thursday

Illustration of the time machine from the film "Time Machine"
A year ago in Disability Thinking … The Mayor Of Swindon.

Discussed the connection between offensive disability language and regressive ideas about disability.

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