Sunday, December 1, 2013

Weekly Wrap-Up

This week in "Disability Thinking" ...

Sunday, November 24, 2013
Monday, November 25, 2013
Tuesday, November 26, 2013
Wednesday, November 27, 2013
Thursday, November 28, 2013
  • No posts.
Friday, November 29, 2013
Saturday, November 30, 2013

Saturday, November 30, 2013

Photo Of The Day

Woman with prosthetic right arm, decorated with multicolored feathers

From the Disabled People Are Sexy Tumblr blog (woman prosthetic arm)

Documentary Trailer

I really want to see this documentary, CinemAbility.


From the trailer, it looks like a very good starting point for discussing disability depictions on film. I wonder how deep the analysis goes? Does it stop with noting the familiar villain / hero cliches, or does it tease out more complex ideas? I also wonder if they look at television, too. I really think you have to.

Hopefully, this will come to Netflix or some other streaming service soon.

Friday, November 29, 2013

3 Year Old Me

Stories topic icon
Thanksgiving is family time, and family time is photo album time.

I was at my Brother and Sister-In-Law’s house for Thanksgiving, and had a chance to look at a couple of long lost family photo albums. One of them included photos from the early ‘70s when I was a very young kid, and these two really blew me away. I was going to bring the albums home, but forgot, so Ian was kind enough to scan and email them to me.
young child in two-leg cast held in a reclined wheeled carrier, being pushed by a teenage girl
These are pictures of me taken in 1970, when I was about 3 years old. I'm not sure who the girl is in the second picture, but Ian thinks she might be someone my parents sometimes hired to help take care of me.

I had had surgery on both of my legs, after which I was in a double-leg cast for several months. The thing I’m in is something my parents thought up, put together by people at a local bike shop, North End Repair, which is now North End Harley-Davidson. It’s made of a standard walker, with wheels attached to the back two legs, two added foldable legs, a series of hooks that attached to hooks on both sides of the cast, so I could be latched into the thing, and a mattress / pillow arrangement for comfort. This configuration allowed for three uses. It could stand me up vertically, tip back for a partial recline position, or become a sort of wheelchair for easy mobility. Since my casted legs were heavy and immobilized, I can't imagine my family looking after me without something like this, yet nothing like it existed as a buyable product at the time. It was pure innovation and resourcefulness, by my parents and a home-town bike and motorcycle repair place.

My Father told me some years later that he tried to get medical equipment people interested manufacturing something like this, but nobody was interested. I’ve still never seen anything quite like it, except maybe for wheelchairs that can stand and recline. Most of those, though, seem a lot heavier and harder to transport in a car.

It's probably been decades since I last saw these pictures. I don't have any identifiable memories of this time, so my whole understanding of this period my life is based on pictures and what my family has told me. How do I feel, looking at these photos? Mostly I'm reminded of how much my parents did right with me, when faced with a lot of unanswered questions, and mostly without much in the way of professional or peer support. They did a hell of a lot, really well, with little else to go on but brains and instinct. Also, I wonder how many other kids, with similar conditions, spent chunks of their childhoods essentially bedridden, simply for lack of a contraption like this.

Wednesday, November 27, 2013

Cartoon Of The Day

From the Disability Curious Tumblr blog.

For all the disabled people traveling tonight ...

Disability Thankfulness

ideas topic icon
I notice a lot of people post to Facebook daily during the month of November, with things they are thankful for. That got me thinking about my "Disability Thinking" blog, and how generally negative it is. For awhile, it felt good to be an unshackled complainer rather than a booster, but I think maybe the balance has gotten out of whack. Thanksgiving might be a good time to start working on that. So, here it goes:

Im thankful that my disabilities have for the most part not included chronic pain.

Im thankful that I was born with my disabilities, which means I never had to go through the traumatic period of loss, adjustment, and even identity crisis that people do when they acquire their disabilities later in life.

Im thankful that I was born into a progressive, loving, supportive family that never did or said anything to seriously undermine me, either intentionally or inadvertently.

I’m thankful that my family had the financial resources to provide me with a plentiful childhood, a great education, and a financially secure start in life.

I see that these are mostly about difficulties I haven’t had to cope with. It doesn’t mean that I think my life would have been horrible or impossible if things had been otherwise. It doesn’t mean that I pity or devalue people who can’t be thankful for these things. I'm pretty sure they've got things they are thankful for that I can't claim. I guess what it amounts to is that for better or for worse, I am thankful … on average … for who I am and turned out to be.

A Pleasant Little Surprise!

icon of old tv set with wheelchair symbol on the screen
I think I’m having a disability-related nerdgasm. Sleepy Hollow, that wonderfully batshit crazy, time-shifted, fish-out-of-water, mythology mashup of a TV show, has added a character in a wheelchair! She’s the teenaged daughter of the police chief, a character that’s becoming better and better himself as the show progresses. She might be just a one-time guest character, and I doubt she’ll ever become a main character, but that works fine for me. She seems like a pretty cool person … cool, but normal, neither a super-crip, nor a bitter basket case.

This show pays new dividends every damned week, and this was such a bonus!

Tuesday, November 26, 2013

A Good Advocacy Result, But I'd Like A Bit More

Advocacy topic icon

The Ethicist is a regular column in the New York Times. People send in their ethical questions, and The Ethicist discusses the dilemma and provides some kind of answer. Klosterman doesn’t seem to be very judgmental or superior, so I’m not all that surprised that the parent in the blog post below got a positive response.

Love That Max - November 25, 2013

What does surprise me is the nature of Klosterman’s response. In a way, it seems too personal. It should be more public, considering his whole job is discussing moral and ethical issues in a public forum. An apology letter and a charitable donation are nice, but it might be more helpful to write a column about the “R-Word” and maybe more broadly, “Political Correctness”. One of the problems with this tiresome but necessary debate over language is that people see it as “political”, when really, they need to think of it “ethical”.

Also, I don’t believe for a minute that Klosterman never heard of people being offended by the “R-Word” until he got that letter. He has to have been aware of the controversy long before that, yet until he got that letter, he chose to use the word anyway. If he ever addresses this in a column, he ought to address that, too … why do people continue to do and say things they basically know they shouldn’t?

"Woof To Wash"



The cool thing about this is that even if you don’t need the dog to do every step, it’s great that it can help with any of the laundry steps you might have trouble with.

One of my Facebook friends tipped me off to this last night. Thank you!

Monday, November 25, 2013

Photo Of The Day

Woman lying on her stomach, propped up on her arms, in a shower with six nozzles spaying water over her whole body
From the Wheelie Wifiee Tumblr blog.

I'd prefer a built-in seat, but this is pretty incredible, too.

Disability News

News topic icon
Jeff Lee, Vancouver Sun - November 19, 2013

The tone of this article surprised me a little. I thought there would be more moaning about regulation gone mad. In fact, it’s pretty even-handed. It also gives a very good explanation of the difference between Accessibility and Universal Design.

Margalit Fox, New York Times - November 23, 2013

I hadn’t heard of Adrienne Asch before. I really appreciated reading about how she reconciled being pro-choice on abortion, while opposing “selective” abortion when used to prevent the birth of babies with disabilities. I’m still not sure the two positions will ever fit together comfortably, but I’m glad to see that someone credible made the effort.

The Editorial Board, New York Times - November 24, 2013

It’s interesting to see how different people and organizations approach their editorials in favor of the UN Convention on the Rights of Persons with Disabilities (CRPD). The main difference among them seems to be whether or not they refer specifically to the right wingers who actually derailed ratification the first time. This New York Times Editorial mentions the “sovereignty” claim and the supposed threat to parental rights, but leaves out the role of home schooling. It seems like everyone has to decide whether it’s better to raise these “ ssues" again and refute them, or ignore them and hope most people aren’t aware of them.

Sunday, November 24, 2013

Video Of The Day

From the Crazy Crip Girl Tumblr ...


“If you fall out, and if you have a pain disorder, it is going to hurt, honestly, it is, it really is. But … but the ability to do tricks, though, I find it very ... I think it makes life better for me, personally."

Weekly Wrap-Up

Links to last week's "Disability Thinking" blog posts ...

Sunday, November 17, 2013
Monday, November 18, 2013
Tuesday, November 19, 2013
Wednesday, November 20, 2013
Thursday, November 21, 2013
Friday, November 22, 2013

No posts.

Saturday, November 23, 2013