Monday, December 16, 2013

About That Interpreter ...

Elizabeth Weise, USA Today - December 13, 2013

I have put off commenting on the story of the fake / bad Sign Language Interpreter at Nelson Mandela’s memorial service. It seemed like the story changed every half day or so, getting stranger and more politically messy at each step. At this point, it seems like there are several intersecting issues of justice, politics, bureaucratic incompetence, and racial politics involved, in addition to the obvious insult to Deaf communities in South Africa and around the world. However, this USA Today article might be a good place for most of us to wrap up our involvement in the story. However it happened, it sure seems like this was a failure to follow some well-established standards and procedures for Sign Language Interpreting, which is a profession, not an art or a charity.

I would only add that in the United States, though the standards are well-established, they are not yet well known, and hospitals, courts, and workplaces too commonly employ “interpreters” who are just as “fake” as that man in Pretoria last week.

Blog Notice ...

Light posting this week, while I work on a grant application.

Saturday, December 14, 2013

Photo Of The Day

Green plastic army man in wheelchair
From the Vuas Tumblr blog, via Rolling Through Life.

Old Arguments and Disability Studies

Girl With The Cane - December 14, 2013
“... people that need that wheelchair ramp to be clear in order to get into the business didn’t ask for the disabilities that make a wheelchair ramp a necessity, and their money is just as good as everyone else’s. Business owners need to ask themselves if they can afford to potentially turn clientele away.”
This is the most widely used argument … aside from adherence to accessibility codes … for making businesses accessible to people with disabilities. For a long time, particularly in the years immediately following the Americans with Disabilities Act, it was a new, almost radical argument. Accessibility isn’t about compassion for the disabled, it’s good business! I still think it’s a very good argument today. The trouble is, I don’t think we really know how good an argument it is. Where are the studies showing not just the potential economic clout of disabled people, but the difference it makes for real businesses when they are or aren’t accessible?

Do disabled people and their families, in fact, shun establishments that aren’t accessible? Are elderly people in significant numbers conscious of accessibility as a distinct issue, in a way that affects their decisions about where to shop and eat? What about other variables, like the age of buildings, downtown vs. urban sprawl locations, and type of business? Are businesses with affordable prices more, or less likely to be accessible? Do accessible businesses tend to be “high end” and expensive? How much can a business actually benefit from improving accessibility? How significant is the loss if they don’t?

I’m not suggesting that the answers to these questions would change our objectives or lessen our commitment to accessibility, but some updated facts might change our tactics, or our understanding of why business people think the way they do about people with disabilities.

Emma Tracey, BBC News Ouch! - December 3, 2013
“One of my concerns with disability studies degrees, is that most of what people are learning about can't be turned into concrete knowledge to improve the general public's understanding of disability. It seems to be very much about phenomenology and post-modernism, which pass most people on the street by."
My questions above reminded me of this piece I read on the BBC "Ouch" website, which includes an interview with Richard Reiser, an Englishman who is both familiar with and critical of "Disability Studies". I think it's the first time I've heard a credible disability activist articulate an essential question I've had for awhile about Disability Studies ... What, exactly does Disability Studies study? And, does it study any of the questions I, as a disabled person, am interested in? We've been using the same arguments and statistics (more or less) that we've been using in discussions of accessibility, economic influence, employment and the like, since at least the early '90s and probably before. It would be helpful if university-based programs whose job is to "study" "disability" would delve into these practical questions, along with the cultural and philosophical pursuits the field is known for.

For all I know, there may be lots of studies by Disability Studies scholars on the psychology of disability discrimination, the economic status of disabled people, what HR professionals really think about hiring disabled people, why disabled people seems of be fair game now for accusations of fraud or laziness, and how disciplined people with disabilities are in fighting for our rights in the marketplace. But if such studies exist, I haven't seen them, and I've been looking.

Friday, December 13, 2013

Don't Let Us Happen To You!

Radio Free Europe, Radio Liberty - December 12, 2013

I haven’t been feeling well today, but I’m a little better now, so I’ll just do this quick post.

The article above concerns one of those disability prejudice incidents that are easy to recognize and be outraged over. There’s a person we can be mad at … an enormously privileged and possibly ridiculous person to boot. The problem is that people with disabilities are cast as punishments in cautionary tales all the time. Usually, it’s when there’s some other goal being discussed that has nothing to do with us. We function as a convenient example of what can happen with things or wrong, or when people misbehave.

Doesn’t if feel great to be of use?

Photo Of The Day

From the Blithe’s Life Tumblr blog, via Wheeliewifee.

Thursday, December 12, 2013

Photo Of The Day

Woman in wheelchair dressed in "steampunk" style, with wheelchair in the same style
From the musiclove Tumblr blog, via the fogwithwheels Tumblr blog.

“Pick Yourself Up …"



Stories topic icon
The latest AmputeeOT video made me think of another story I’ve been told about my early childhood.

After I finally started walking, which was when I was 3 years old, my mother at some point told my older brother that she couldn’t let me go outside to play by myself, because when I fell, I wasn’t able to pick myself up again. Ian, who I’m guessing was 17 years old at that time, took me outside in the yard and by watching how I moved in various situations, where my strengths were, and my various ranges of motion, figured out a way that I could get myself up to my feet without help. That’s Occupational Therapy right there … kind of like Christina’s demonstration of standing up on an icy surface with a prosthetic leg. This is another childhood milestone I don’t actually remember, but it sure sounds right. And I know for sure that it meant a lot to Mom.

Wednesday, December 11, 2013

Video Of The Day


This is a pretty good unintentional sequel to last week’s Mannequins video. I love the bit with the woman describing her family’s reaction to each of her four pregnancies.

Random Acts Of Kindness

Ideas topic icon
Just Rollin On - December 10, 2013

This blog post caught my eye yesterday. The blogger, a wheelchair user, describes his conflicting feelings when an older woman in a grocery store ... a complete stranger ... spontaneously offered to pay for his groceries. He describes feeling that his reaction was not what he would have hoped, because he failed to turn down the woman's offer, felt angry and condescended to afterwards, and felt guilty for feeling uncomfortable with the entire scenario.

I have had people offer to let me go ahead of them in lines at cash registers, but I can't recall having anyone offer to pay for stuff I'm preparing to buy. I'm not counting the couple of times in recent years when someone ahead of me in line at a drive through has paid in advance for my cheeseburger and fries. I don't count it because most likely they didn't see me or know that I have disabilities. Also, I've learned that this is a thing people do nowadays ... they "pay it forward" by anonymously treating people they don't know, especially in drive-thrus. The people who do it feel it's a great way to spread happiness without taking selfish credit. Some people receive said happiness with good cheer, while others feel uncomfortable, or ... like me ... wonder if they'd be as generous when it comes to supporting tax-funded support programs like Food Stamps or Unemployment.

Those issues aside, disability can cast a different light on these situations, both for the would-be giver, and the receiver. As is becoming my habit when I'm not sure I've got an issue figured out, I'm just going to make some bullet pointed points about disabled people and "random acts of kindness":

• The whole dilemma is about three entirely different, in some ways conflicting factors that can all be active at the same time:

1. The desire to be kind to strangers, particularly those you perceive to need of kindness.

2. The real need some (or all?) people have for kindness and generosity.

3. The harm and discomfort that can come when social inequality is reinforced or emphasized by unexamined assumptions and lack of sensitivity.

• Actually, number 3 there is the real issue. The receiver is almost always just a little bit ... if not a great deal ... put off balance and made to feel uncomfortable, and unequal, by these out of nowhere gifts, especially when they are public.

• I don't think you have to be cynical to realize that random, unexpected, public generosity ... whatever positives may flow from it ... area actually quite likely to make a recipient uncomfortable. That should just be common sense.

• I'm not a big fan of the anonymous gift in the drive-thru line, but I prefer it slightly to the more public method, like what the blogger describes. Whether or not the woman meant anything but pure kindness, it comes off as a rather self-aggrandizing, attention-seeking gesture. The supposedly desired effect could have been achieved without causing a fuss, but she chose to make her gesture public.

• On the other hand, doing it anonymously almost completely removes the possibility of refusing, while asking first ... which the woman did ... at least makes it possible for the potential recipient to say, "You're so kind, but no, thank you, I've got it." It's the same principle as not immediately starting to push a wheelchair user up a hill, but asking first if they'd like some help.

• Probably the most important factor in a scenario like this is how the would-be giver accepts the turn-down. If they say, "Okay, just thought I'd ask. Have a great day!", then the whole thing becomes just a pleasant interaction, and nobody feels slighted or placed in an unequal position. If instead they insist, it quickly becomes obnoxious.

• If the intended recipient is obviously disabled ... in a wheelchair for example ... then one should assume that the potential for offense is quite high. Not because disabled people are more crabby than others, but because there are just too many ways the gesture can be misinterpreted. This is a good place to "check yourself". Ask yourself, "Why am I offering to buy THIS woman's coffee?" If the answer is anything like, "Because she's using crutches and must have a hard life", then rethink before you act.

• If we disabled people really feel strongly about unsolicited charity, and hate the imbalance it implies, maybe we could do something ourselves to restore balance. Why don't we start offering to pay for random, non-disabled peoples' coffees or groceries? It would be unusual enough that if enough of us started doing it once a week maybe, I'm sure it would make an impression.

I'd be curious to find out what others think. Click below to comment!

Tuesday, December 10, 2013

Photo Of The Day

Photo of a sneaker with a worn out hole in the sole
From the CP Shoes Tumblr blog.

This is a fascinating blog with a great premise … the little-known problem of early shoe death due to the strange ways of walking that often come with physical disabilities.

Advocacy To Serve

Advocacy topic icon
IsraelSeen.com - December 7, 2013

I don’t know how the heck I found this article, but it got me really excited.

When I was a Junior in High School, we all took a standardized test used by the military to identify aptitudes for different military occupations. It was kind of fun, and I thought nothing of it. A few months later, I started getting brochures in the mail from different branches of the military. Then, one evening, our dinner was interrupted by a call from a Navy recruiter who wanted to tell me how awesome the submarine service was. He actually never spoke to me, but my father toyed with him for awhile, before asking him how they would accommodate my disabilities. At the time, I thought the whole thing was kind of funny, and I have never had any desire to serve in the military, even as a childhood fantasy.

Still, I occasionally think about this incident, and how truly strange it is that I couldn't serve in the military, even though there are plenty of things I could have done that have nothing to do with physical fitness ... useful things not requiring living in a submarine, riding in a tank, flying a fighter jet, or going on a foot patrol. Which is why this Israeli man's successful self-advocacy excited me. His physical disabilities are if anything more significant than mine, but he's doing his part. Obviously, he's motivated by beliefs I have a hard time relating to, but that’s beside the point. He wanted to serve, and seems to have known, on some level, that there had to be a way he could do so. His advocacy was personal and persistent, and successful.

When will something like this happen her in the USA? When will a highly motivated disabled young person offer him or herself to the military long enough and sincerely enough to break through to a real service role?